Hi Family and Friends,
I can't believe that it's been about 80 days since the transplant. At first, time felt like it was crawling at a snail's pace, but now it's seems to be passing very quickly. Of course that is always the case when dealing with a stressful situation. It is a great sign that time seems to be moving at a rather normal pace these days. When we first returned home from the hospital, Mike was very weak. Our first attempts at taking a walk, consisted of the few steps to the corner and back. I wore my flip-flops, and the only hazard that I had in doing so, was that I would trip on my sandals from walking too slowly. When we arrived back at the house, Mike had to rest because he was worn out. We continued our daily walks and slowly, but surely, progress was made. Now, when we go for a walk...I have to put on my very serious NB shoes and keep pace with Mike. Who would've "thunk it"? Mike is enjoying the Wii. It is really a fun way to excercise your body and brain. He is improving quickly, but I'm still holding my own on many of the game scores.
I've been thinking about Neil Armstrong's moonwalk 40 years ago on July 20. Of course, I remember being glued to the TV when the broadcast showed the first steps. I still get emotional thinking about that thrilling moment. Neil Armstrong faced the challenge of that day against enormous odds. He accepted the Apollo mission knowing that there was a 50/50 chance that he would return safely from that trip. It took tremendous courage to take that "leap of faith". Without question, he is one of the most important heroes of our time. There are many heroes that have accomplished extraordinary feats. They may be more modest by comparison, but that doesn't make them any less significant. Some accomplishments play to a smaller audience. Neil Armstrong will always be thought of as a hero. Heroes must have enormous spirit to rise to the occasion in the face of adversity. I find it it easy to think of Mike as my hero. He is courageous, gracious, determined, and sensitive...all traits that have aided him in getting to this point in his recovery. He has worked diligently to increase his stamina. Of course, the Donor, Doctors and Nurses have provided the medical necessities that have brought him to this point, but HIS positive attitude is the driving force that propels him forward. So, while his steps may not be the first ones on the moon... they radiate with the moon's glow, carrying that same courage and strength one needs to make a giant leap. Thank you for your part is getting us to this point in Mike's recovery. We wish you LOVE, STRENGTH, and STAMINA. Always and 4ever- Cookie
Sunday, July 19, 2009
Thursday, July 9, 2009
Day 72
Hi to All,
I'm not sure anyone out there will even read this post, as most of you probably gave up on me due to my neglect these past many weeks! But several people have asked about the blog, so I finally got around to a new update. If you have missed us, please accept our apologies. There just has not been that much to write about lately.
Anyway, I hope you all had a great Fathers Day, and a fabulous 4th of July weekend! I have been feeling pretty good all along, with very minor issues to deal with, and the medical team is very pleased with my progress. I had some anemia issues for several weeks, but the counts are rising (mostly due to some shots I have received the past 4 weeks), and my energy level has improved with the treatments. While I am not going to attend my Enro sales meeting next week in Dallas, I am still shooting for a return to active duty in early August, especially for my first big show in Chicago beginning Aug. 9th. In fact, I just received my first shipment of sample cartons when we arrived home today, so things are starting to look a little more normal (at least normal for me, a very relative term).
Speaking of returning home today, I must tell you that Cookie and I spent most of the day at the U. of Chicago (a common occurance). However this was not a common day....while I got my usual blood work and examination, we joined the "family plan" again, and Cook had her annual visit with good old Dr. Baron. In addition, she had a PET scan as well and I am very thrilled to announce that she remains clean as a whistle, and her blood work was "mahvelous"!!! Let's hear it for the Cooker!!! Thank G_d for that, so we won't worry about her for at least another year!
My reports were also improved, and I get a little vacation from that place, as I don't have to go back for 2 1/2 weeks (Yipee).
Many people ask me how I spend my time at home, and I always struggle to give a good answer. Luckily, time just passes with menial tasks, puzzles, reading, T.V, walking...etc. Good thing I am easily entertained, huh? Actually, we have a new addition to the household: Cook bought me a Wii for Fathers Day, and it has really been great. Remember those couple of times I played in the hospital with Bridgette? Well, now we have our own game, and a Wii Fit board to boot. The competition is back on, and we are both always jockeying for number 1 scores in many venues now. Some of this stuff is really hard!!! Best of all, it is giving me some excersize that is sorely needed, as I need to build up to "schlepping" again for a living soon.
I also have been given the green light to go out more, and we have enjoyed several outdoor meals at restaurants lately (obviously last minute planning "weather permitting", which by the way has been pretty lousy here, as most of you know). Although I still wear a mask for most indoor visits, it's great to have a change of scenery once in a while.
I guess that wraps it up for now, and I thank all of you who are still paying attention! We love you all, and hope to see more of you soon!
Love,
Mike
I'm not sure anyone out there will even read this post, as most of you probably gave up on me due to my neglect these past many weeks! But several people have asked about the blog, so I finally got around to a new update. If you have missed us, please accept our apologies. There just has not been that much to write about lately.
Anyway, I hope you all had a great Fathers Day, and a fabulous 4th of July weekend! I have been feeling pretty good all along, with very minor issues to deal with, and the medical team is very pleased with my progress. I had some anemia issues for several weeks, but the counts are rising (mostly due to some shots I have received the past 4 weeks), and my energy level has improved with the treatments. While I am not going to attend my Enro sales meeting next week in Dallas, I am still shooting for a return to active duty in early August, especially for my first big show in Chicago beginning Aug. 9th. In fact, I just received my first shipment of sample cartons when we arrived home today, so things are starting to look a little more normal (at least normal for me, a very relative term).
Speaking of returning home today, I must tell you that Cookie and I spent most of the day at the U. of Chicago (a common occurance). However this was not a common day....while I got my usual blood work and examination, we joined the "family plan" again, and Cook had her annual visit with good old Dr. Baron. In addition, she had a PET scan as well and I am very thrilled to announce that she remains clean as a whistle, and her blood work was "mahvelous"!!! Let's hear it for the Cooker!!! Thank G_d for that, so we won't worry about her for at least another year!
My reports were also improved, and I get a little vacation from that place, as I don't have to go back for 2 1/2 weeks (Yipee).
Many people ask me how I spend my time at home, and I always struggle to give a good answer. Luckily, time just passes with menial tasks, puzzles, reading, T.V, walking...etc. Good thing I am easily entertained, huh? Actually, we have a new addition to the household: Cook bought me a Wii for Fathers Day, and it has really been great. Remember those couple of times I played in the hospital with Bridgette? Well, now we have our own game, and a Wii Fit board to boot. The competition is back on, and we are both always jockeying for number 1 scores in many venues now. Some of this stuff is really hard!!! Best of all, it is giving me some excersize that is sorely needed, as I need to build up to "schlepping" again for a living soon.
I also have been given the green light to go out more, and we have enjoyed several outdoor meals at restaurants lately (obviously last minute planning "weather permitting", which by the way has been pretty lousy here, as most of you know). Although I still wear a mask for most indoor visits, it's great to have a change of scenery once in a while.
I guess that wraps it up for now, and I thank all of you who are still paying attention! We love you all, and hope to see more of you soon!
Love,
Mike
Sunday, May 31, 2009
Day + 33
Hi All,
I know I have not written to blogland in a while, but I'm sure you have all found other things to do besides reading this! Hope you enjoyed Cookies' entry a few days ago, but to clarify one point: I never really saw her sitting down and watching the plants grow for any length of time. In fact, I rarely see her sit down at all, unless it is on the deck sunbathing on occasion! She is just not the sitting around type (I have become much better at that, and was always better than her).
Hard to believe I am home for three weeks already! This past week was a little more challenging, as I arrived at my first milestone of about 30 days post transplant, which meant a battery of tests last Tuesday was on my schedule. I went from a blood draw, to a PET scan, to a CT scan, to a bone marrow biopsy, to a surgeon visit, to a Pulmonary Function test. Do I know how to have a good time, or what?! I was back at U of C on Thursday, and found that my scans were clean (they better be!!!), I was still breathing, and I remain a little anemic. This explains why I have been a little low on energy lately, even compared to what I was before. But I am scheduled to get a couple of bags of blood tomorrow, so that should perk me up again!
One other bump in the road happened this week as well: I mentioned I saw the surgeon Tues., which was due to a recurrence of an infection starting up again in the site of my biopsy last Fall in the groin area. By Thursday, it was full blown, and he needed to reopen and drain the site while I was there. This did not make me particularly happy, but it is the third time this has happened, and therefore one at least knows what to expect. It is not related to my other treatment, and probably just occurred due to a suppressed immune system. So between the bone marrow biopsy on my left butt, and the right front groin, they now have me coming and going!!
This too shall pass. But meanwhile, I want to tell you all how fantastic my nurse Cookie has been, which will come as no surprise to anyone. It's one thing to be supportive and caring to your spouse in time of illness. It's another level, above and beyond the normal call of duty, to have to take care of things like my groin situation. I don't want to gross anyone out, but I must tell a few details so you understand her twice daily job fully: This is an open incision, that needs to be cleaned and packed twice a day. Picture Cook with her rubber gloves and mask, a wooden swab in hand, a piece of wet tape in the other hand, on her knees, pushing this tape into the incision until fully packed. Meanwhile, I am laying there grunting often in pain. Those who know her well, know that that's the hardest part....knowing that she is hurting me, while doing what is best for me at the same time! And the amazing part is that she never once has "blown her Cookies" . Nurse Mylove(2) would be so proud of her!! I am so proud of her...how lucky can one man be?!!
Sorry for rambling on, but I could not resist. Love to you all, and I hope to see many of you before too long.
Mike
I know I have not written to blogland in a while, but I'm sure you have all found other things to do besides reading this! Hope you enjoyed Cookies' entry a few days ago, but to clarify one point: I never really saw her sitting down and watching the plants grow for any length of time. In fact, I rarely see her sit down at all, unless it is on the deck sunbathing on occasion! She is just not the sitting around type (I have become much better at that, and was always better than her).
Hard to believe I am home for three weeks already! This past week was a little more challenging, as I arrived at my first milestone of about 30 days post transplant, which meant a battery of tests last Tuesday was on my schedule. I went from a blood draw, to a PET scan, to a CT scan, to a bone marrow biopsy, to a surgeon visit, to a Pulmonary Function test. Do I know how to have a good time, or what?! I was back at U of C on Thursday, and found that my scans were clean (they better be!!!), I was still breathing, and I remain a little anemic. This explains why I have been a little low on energy lately, even compared to what I was before. But I am scheduled to get a couple of bags of blood tomorrow, so that should perk me up again!
One other bump in the road happened this week as well: I mentioned I saw the surgeon Tues., which was due to a recurrence of an infection starting up again in the site of my biopsy last Fall in the groin area. By Thursday, it was full blown, and he needed to reopen and drain the site while I was there. This did not make me particularly happy, but it is the third time this has happened, and therefore one at least knows what to expect. It is not related to my other treatment, and probably just occurred due to a suppressed immune system. So between the bone marrow biopsy on my left butt, and the right front groin, they now have me coming and going!!
This too shall pass. But meanwhile, I want to tell you all how fantastic my nurse Cookie has been, which will come as no surprise to anyone. It's one thing to be supportive and caring to your spouse in time of illness. It's another level, above and beyond the normal call of duty, to have to take care of things like my groin situation. I don't want to gross anyone out, but I must tell a few details so you understand her twice daily job fully: This is an open incision, that needs to be cleaned and packed twice a day. Picture Cook with her rubber gloves and mask, a wooden swab in hand, a piece of wet tape in the other hand, on her knees, pushing this tape into the incision until fully packed. Meanwhile, I am laying there grunting often in pain. Those who know her well, know that that's the hardest part....knowing that she is hurting me, while doing what is best for me at the same time! And the amazing part is that she never once has "blown her Cookies" . Nurse Mylove(2) would be so proud of her!! I am so proud of her...how lucky can one man be?!!
Sorry for rambling on, but I could not resist. Love to you all, and I hope to see many of you before too long.
Mike
Thursday, May 28, 2009
Sunshine In My Heart
Dear Family and Friends,
I'm looking out on another gloomy day, but I'm thinking about all of the evidence that the sun is indeed shining. First of all, Mike is doing well. His counts are holding, and in some cases, improving. Today, he will get the results of a number of tests that he had on Tues. Hoping for confirmation that his body is doing what it needs to do to accept the 21 year old immune system. If only it were a case of "mind over matter", we'd be done with the whole process.
Dealing with not being able to return to school has left me with considerable time on my hands...which is NOT the usual scenario for me. Consequently, I have nearly completed the planting of the garden. It is thrilling to me to plan, plant, and nuture a garden. It compliments my most cherished role in life. Nuturing the people that I love. I hope that each of you feels loved and nutured by your family and friends...including Mike and I.
SOOOOOO...now that the plants are in the ground, getting plenty of nature's juice, I am watching them grow. No! REALLY! I pull a chair up to the plants and watch them for any sign of growth. Yesterday, I got so excited because I saw a leaf move. My excitement vanished when I saw the rain hitting the leaf . Although I didn't have any luck yesterday, I'm determined to try again. I really think this could be the best sporting event ever. Do you think that Mike will agree?
Well, Just poking fun at myself. I think I need a rescue plan. I can't hover around Mike. My flowers are growing too slowly. Friends are working. Even with exercising, gardening, and running errands, and tutoring, I have unexpected time on my hands. I suppose that I'll get used to it. There is a silver lining...it's called Mike. He's got a great attitude, and continues to maintain his sense of humor. All of you...Keep strong and Keep Centered.
With Love,
Cookie
I'm looking out on another gloomy day, but I'm thinking about all of the evidence that the sun is indeed shining. First of all, Mike is doing well. His counts are holding, and in some cases, improving. Today, he will get the results of a number of tests that he had on Tues. Hoping for confirmation that his body is doing what it needs to do to accept the 21 year old immune system. If only it were a case of "mind over matter", we'd be done with the whole process.
Dealing with not being able to return to school has left me with considerable time on my hands...which is NOT the usual scenario for me. Consequently, I have nearly completed the planting of the garden. It is thrilling to me to plan, plant, and nuture a garden. It compliments my most cherished role in life. Nuturing the people that I love. I hope that each of you feels loved and nutured by your family and friends...including Mike and I.
SOOOOOO...now that the plants are in the ground, getting plenty of nature's juice, I am watching them grow. No! REALLY! I pull a chair up to the plants and watch them for any sign of growth. Yesterday, I got so excited because I saw a leaf move. My excitement vanished when I saw the rain hitting the leaf . Although I didn't have any luck yesterday, I'm determined to try again. I really think this could be the best sporting event ever. Do you think that Mike will agree?
Well, Just poking fun at myself. I think I need a rescue plan. I can't hover around Mike. My flowers are growing too slowly. Friends are working. Even with exercising, gardening, and running errands, and tutoring, I have unexpected time on my hands. I suppose that I'll get used to it. There is a silver lining...it's called Mike. He's got a great attitude, and continues to maintain his sense of humor. All of you...Keep strong and Keep Centered.
With Love,
Cookie
Thursday, May 21, 2009
Day + 23
Hi To All,
It's been a few days, but I figure you all may be tiring of this, especially when there is not much new to report, so I will space them out accordingly. Medical update: Had two visits to the U. of C. this week, and still getting good reports on all the labs. They tweaked my meds again, and are watching out till next week for a little anemia, which is very common for us transplantees. The Doc asked me how many blood transfusions I had while in the hospital, and when I told him none, he seemed surprised, and said that was another exception to the norm! Next Tuesday is my next bone marrow biopsy (not my "fave"!), and they tell me from that from that, they will be able to tell exactly how much of my marrow is my original, or the Studs' contribution. Isn't that amazing? I'll fill you all in on the details next week sometime.
Anecdote for today: Many of you out there in blogland know that I am rather infamous for my lack of singing talent, though I usually do not let that stop me when moved by a great song. Cook is certainly used to it (I do not contain it to the shower stall). Some have heard me validate this with the story of having to mouth the words at our Fraternity Sing in college to avoid ruining it for everyone. Anyway, Cookie was driving me down to the hospital this week, and on the radio they were playing Lucy in the sky with diamonds (by the Beatles obviously). Having grown up in the Beatles Age (Jill A and I saw them live in Chicago on their first tour, circa early '60's), I still love their music, and began to sing along. Here's where it gets strange...I actually sang a whole bar, and turned to Cook and said: "Did you hear that? I think I actually was on key for that whole phrase!" She smiled, looked at me in amazement, and said: "You really were!"
People, I have to tell you that this was truly a shocking accomplishment. I don't think I have ever been on key for that many notes and words in my entire life! There is only one person in this world who has ever told me that I have a good voice, and that was my mother-in-law, which only goes to show you how thick those rose colored glasses are that she puts on whenever discussing her children, spouses and grandchildren. Even my own mother made fun of my singing!
I tell you this story because I think it may have something to do with the new me! Maybe my 21 year old stud is a rock star, and now all those songs brought to mind by the names of the people we have met on this journey will be ammunition for my new-found abilities!!! We will keep you "posted" if this does indeed continue.
Wishing all of you a great Memorial Day Weekend! The weather turned great here in Chicago, and we hope you all enjoy the time off from your daily chores. Good health to All!!
Mike
It's been a few days, but I figure you all may be tiring of this, especially when there is not much new to report, so I will space them out accordingly. Medical update: Had two visits to the U. of C. this week, and still getting good reports on all the labs. They tweaked my meds again, and are watching out till next week for a little anemia, which is very common for us transplantees. The Doc asked me how many blood transfusions I had while in the hospital, and when I told him none, he seemed surprised, and said that was another exception to the norm! Next Tuesday is my next bone marrow biopsy (not my "fave"!), and they tell me from that from that, they will be able to tell exactly how much of my marrow is my original, or the Studs' contribution. Isn't that amazing? I'll fill you all in on the details next week sometime.
Anecdote for today: Many of you out there in blogland know that I am rather infamous for my lack of singing talent, though I usually do not let that stop me when moved by a great song. Cook is certainly used to it (I do not contain it to the shower stall). Some have heard me validate this with the story of having to mouth the words at our Fraternity Sing in college to avoid ruining it for everyone. Anyway, Cookie was driving me down to the hospital this week, and on the radio they were playing Lucy in the sky with diamonds (by the Beatles obviously). Having grown up in the Beatles Age (Jill A and I saw them live in Chicago on their first tour, circa early '60's), I still love their music, and began to sing along. Here's where it gets strange...I actually sang a whole bar, and turned to Cook and said: "Did you hear that? I think I actually was on key for that whole phrase!" She smiled, looked at me in amazement, and said: "You really were!"
People, I have to tell you that this was truly a shocking accomplishment. I don't think I have ever been on key for that many notes and words in my entire life! There is only one person in this world who has ever told me that I have a good voice, and that was my mother-in-law, which only goes to show you how thick those rose colored glasses are that she puts on whenever discussing her children, spouses and grandchildren. Even my own mother made fun of my singing!
I tell you this story because I think it may have something to do with the new me! Maybe my 21 year old stud is a rock star, and now all those songs brought to mind by the names of the people we have met on this journey will be ammunition for my new-found abilities!!! We will keep you "posted" if this does indeed continue.
Wishing all of you a great Memorial Day Weekend! The weather turned great here in Chicago, and we hope you all enjoy the time off from your daily chores. Good health to All!!
Mike
Sunday, May 17, 2009
One Fine Day
Hi Family and Friends,
We've been home for a week now and things are going pretty well. Mike is getting stronger. We've been walking. The first walk was 10 minutes in length. Tonight we walked for 20 minutes. It felt great to be outside and be surrounded by fresh air.
All day I have been waiting to blog because I was excited to share a story with you. We had someone come to the house this morning to clean the gutters and windows. He even helped move some heavy planters for me. I know that you won't believe this...but, his name is Angel. YEP! We met an ANGEL today. I have added Angel to our growing list of recent new friends with incredible names. Mylove, Cherish, and now...Angel. These names all evoke feelings of tenderness, gentleness, and caring. All the love, care and support that you continue to give Mike and me is connected in some way to these names. Love is the spiritual connection that continues to link us with the most positive kind of energy. It feels as though you are encircling us with your acts of loving kindness.
I can't wait to meet the next new friend. Should we take bets on what wonderful new name will end up on the list? Tomorrow we head back to the hospital for a check-up. Let's all make it a GREAT DAY! Thanks for caring and sharing.
Love, Cookie
We've been home for a week now and things are going pretty well. Mike is getting stronger. We've been walking. The first walk was 10 minutes in length. Tonight we walked for 20 minutes. It felt great to be outside and be surrounded by fresh air.
All day I have been waiting to blog because I was excited to share a story with you. We had someone come to the house this morning to clean the gutters and windows. He even helped move some heavy planters for me. I know that you won't believe this...but, his name is Angel. YEP! We met an ANGEL today. I have added Angel to our growing list of recent new friends with incredible names. Mylove, Cherish, and now...Angel. These names all evoke feelings of tenderness, gentleness, and caring. All the love, care and support that you continue to give Mike and me is connected in some way to these names. Love is the spiritual connection that continues to link us with the most positive kind of energy. It feels as though you are encircling us with your acts of loving kindness.
I can't wait to meet the next new friend. Should we take bets on what wonderful new name will end up on the list? Tomorrow we head back to the hospital for a check-up. Let's all make it a GREAT DAY! Thanks for caring and sharing.
Love, Cookie
Day + 19
Hi All,
Well, I have been home a week now, and all seems to be going smoothly to date. Saw my transplant Doc on Thursday, and he confirmed that as well. They are constantly tweaking my medicine doses, and monitoring all my body functions, and I get the feeling that will go on for a long time, but that's what they are there for, right? Makes me think of a master chef, constantly tasting his creation, adding a pinch here, and a pinch there to offset too much of whatever ingredients he uses. ( I know Richie takes that analogy to heart!) Hope I taste terrific when it's all over! One difficult thing that I feel very badly about after my doctor visit...When I told him Cookie was going back to work next week to her 1st grade class, and I asked the doc what preventative measures she could take to not pick up any illness from the kids. He proceeded to tell me that, if at all possible, she should take off the remainder of the school year, or live somewhere else while she went back! Not very good options, either way. I dreaded telling her the advice when I got home. But when he explained to me that, among other everyday sicknesses floating around, the flu (not just the new version) is rampant and at it's highest level of the year. And he has transplant patients back in the hospital, some in serious trouble, from picking up what most of the adult world can fight off on their own. My darling wife is a very devoted teacher, as most of you know. But she is an even more devoted spouse, and refused to leave me for 3-4 weeks. So she is taking off and additional 2 weeks, and playing it by ear. She would love to see her little kids again, and may work out something for a few days at the end. Thank goodness there are teachers like her out there for our youth! And thank goodness she is my wife!
Meanwhile, it's great to finally see some sunshine. We were out on the deck yesterday, under the new umbrella we got from dear sister Barbara and brother-in-law Herb. And Cook and I took a stroll around the neighborhood as well (have to start regaining some muscle and stamina!). We had a great evening with friends Sandi and Warren Friday night, which was a treat. Thanks to Mylove (2) for keeping in touch! I ditto Cookies last blog, and she said it better than I can, regarding how great you all have been since the beginning of this thing...please keep it up!
Big day in sports today...Blackhawks vs. Wings (a classic original 6 rivalry that has the town buzzing), and two game sevens in the NBA...I know I will have plenty of TV time! Love to you All!
Mike
Well, I have been home a week now, and all seems to be going smoothly to date. Saw my transplant Doc on Thursday, and he confirmed that as well. They are constantly tweaking my medicine doses, and monitoring all my body functions, and I get the feeling that will go on for a long time, but that's what they are there for, right? Makes me think of a master chef, constantly tasting his creation, adding a pinch here, and a pinch there to offset too much of whatever ingredients he uses. ( I know Richie takes that analogy to heart!) Hope I taste terrific when it's all over! One difficult thing that I feel very badly about after my doctor visit...When I told him Cookie was going back to work next week to her 1st grade class, and I asked the doc what preventative measures she could take to not pick up any illness from the kids. He proceeded to tell me that, if at all possible, she should take off the remainder of the school year, or live somewhere else while she went back! Not very good options, either way. I dreaded telling her the advice when I got home. But when he explained to me that, among other everyday sicknesses floating around, the flu (not just the new version) is rampant and at it's highest level of the year. And he has transplant patients back in the hospital, some in serious trouble, from picking up what most of the adult world can fight off on their own. My darling wife is a very devoted teacher, as most of you know. But she is an even more devoted spouse, and refused to leave me for 3-4 weeks. So she is taking off and additional 2 weeks, and playing it by ear. She would love to see her little kids again, and may work out something for a few days at the end. Thank goodness there are teachers like her out there for our youth! And thank goodness she is my wife!
Meanwhile, it's great to finally see some sunshine. We were out on the deck yesterday, under the new umbrella we got from dear sister Barbara and brother-in-law Herb. And Cook and I took a stroll around the neighborhood as well (have to start regaining some muscle and stamina!). We had a great evening with friends Sandi and Warren Friday night, which was a treat. Thanks to Mylove (2) for keeping in touch! I ditto Cookies last blog, and she said it better than I can, regarding how great you all have been since the beginning of this thing...please keep it up!
Big day in sports today...Blackhawks vs. Wings (a classic original 6 rivalry that has the town buzzing), and two game sevens in the NBA...I know I will have plenty of TV time! Love to you All!
Mike
Wednesday, May 13, 2009
Home Sweet Home
Dear Family and Friends,
It is great to be home with Mike. I still can't believe the speed in which we were able to return home. "Mike is really incredible, isn't he?" I'm so proud of him for handling this ordeal with such a positive attitude. We are settling into a routine that includes alot of rest and a little work. At times I am reminded of the days when we waited for Jason and Marni to wake from their naps. It makes me feel young again. Mike blogged about appreciating the "little things" in life, and I couldn't agree more. I am filled with gratitude for the blessings that we've been given. Having Mike home and getting stronger is an answered prayer. In her last comment, Mari wrote about having her life saved by someone. I am so happy that Mari's fate was changed. She has been a positive influence in the lives of so many others (including us). I started thinking about how certain actions can change a life. All of you have been a lifeline for us. Our lives are forever changed by your kindness and generosity. It is our connections to one another that make us feel fulfilled. This blog has helped us to be connected to one another, and to form a circle of love around Mike. It has been a powerful tool in his recovery. It's an example of the positive effect of nuturing. The road is less rocky with your encouragement and support. Thank you for your part in bringing "MY BOYFRIEND" back home. I am so grateful to all of you.
Love, Cookie
It is great to be home with Mike. I still can't believe the speed in which we were able to return home. "Mike is really incredible, isn't he?" I'm so proud of him for handling this ordeal with such a positive attitude. We are settling into a routine that includes alot of rest and a little work. At times I am reminded of the days when we waited for Jason and Marni to wake from their naps. It makes me feel young again. Mike blogged about appreciating the "little things" in life, and I couldn't agree more. I am filled with gratitude for the blessings that we've been given. Having Mike home and getting stronger is an answered prayer. In her last comment, Mari wrote about having her life saved by someone. I am so happy that Mari's fate was changed. She has been a positive influence in the lives of so many others (including us). I started thinking about how certain actions can change a life. All of you have been a lifeline for us. Our lives are forever changed by your kindness and generosity. It is our connections to one another that make us feel fulfilled. This blog has helped us to be connected to one another, and to form a circle of love around Mike. It has been a powerful tool in his recovery. It's an example of the positive effect of nuturing. The road is less rocky with your encouragement and support. Thank you for your part in bringing "MY BOYFRIEND" back home. I am so grateful to all of you.
Love, Cookie
Tuesday, May 12, 2009
Day + 14
Hi All,
I know it's been a couple of days, but we had internet problems at home (plus I was lazy and enjoying being there too much). On the medical front, all is going well still. We went down to U of C yesterday for blood work and a checkup, and all is looking normal under the circumstances. I was told that I should not leave the house for about a month, except to walk in the neighborhood, or go on the deck (with a mask on). That did not thrill me, but better safe than sorry. They gave me the analogy that I have the immune system of a new-born baby, and getting things even as mild as the common cold to others, could land me in the hospital if passed on to me. Good news is that I can have a controlled stream of visitors at home, but please keep in mind that anyone who comes should not have even a hint of any illness, or have exposed to anyone that is sick recently. I ask you all to follow those guidelines, as I plan on staying out of the hospital for a long time. Speaking of being home, allow me to add a bit of philosophy here. I think everyone, after going through any trauma or personal tradgedy, tends to appreciate the good things in life for a little while. Unfortunately, most of us forget about that in rather short order, and go back to taking things for granted. I am at that point where I am appreciating all the little comforts and blessings I have, including all of you. To give you a couple of examples: I love that I now have large, absorbant, soft towels when I get out of the shower, as opposed to little things that are see-through, and almost take your skin off! I love that I have soft 2-ply tissue paper (no further explanation necessary)! I love that I have a bed and pillows that are not plastic that makes you sweat constantly! I love a TV with all the channels available! I love a house with different rooms to walk into, especially a kitchen with food I like in the Fridge! I think you all get the picture....please stop more often and smell the roses, and try to keep those minor annoyances in life in perspective. You will be a much happier person, I'm sure.
Enough of Mike on Life. In the near future, I have twice a week visits to the doctors, and home nursing care to take care of my catheter (a cute little think coming out of my chest with three lines (pigtails) to access all in and out activities easily (beats needle sticks by a mile). Also, the expected loss of hair occured the last 2 days, so those of you who have seen me lately, don't be surprised to see the Yul Brenner look again (now popularized by many star athletes you know). While until now, my hair was longer than any of you have seen in years, sorry most of you missed it. Since 3 is my lucky number, I am assuming that when it comes back again for the third time, it will be darker and fuller than ever!
On the sports front, my Blackhawks won their series last night in the most incredible third period I can remember, And my new favorite team, the Cav's swept again. Life is good.
I don't know if we will be doing this blog every day now, but I will be checking every day, so please keep the comments coming. Hope you all had a great Mothers Day!
Love to All,
Mike
I know it's been a couple of days, but we had internet problems at home (plus I was lazy and enjoying being there too much). On the medical front, all is going well still. We went down to U of C yesterday for blood work and a checkup, and all is looking normal under the circumstances. I was told that I should not leave the house for about a month, except to walk in the neighborhood, or go on the deck (with a mask on). That did not thrill me, but better safe than sorry. They gave me the analogy that I have the immune system of a new-born baby, and getting things even as mild as the common cold to others, could land me in the hospital if passed on to me. Good news is that I can have a controlled stream of visitors at home, but please keep in mind that anyone who comes should not have even a hint of any illness, or have exposed to anyone that is sick recently. I ask you all to follow those guidelines, as I plan on staying out of the hospital for a long time. Speaking of being home, allow me to add a bit of philosophy here. I think everyone, after going through any trauma or personal tradgedy, tends to appreciate the good things in life for a little while. Unfortunately, most of us forget about that in rather short order, and go back to taking things for granted. I am at that point where I am appreciating all the little comforts and blessings I have, including all of you. To give you a couple of examples: I love that I now have large, absorbant, soft towels when I get out of the shower, as opposed to little things that are see-through, and almost take your skin off! I love that I have soft 2-ply tissue paper (no further explanation necessary)! I love that I have a bed and pillows that are not plastic that makes you sweat constantly! I love a TV with all the channels available! I love a house with different rooms to walk into, especially a kitchen with food I like in the Fridge! I think you all get the picture....please stop more often and smell the roses, and try to keep those minor annoyances in life in perspective. You will be a much happier person, I'm sure.
Enough of Mike on Life. In the near future, I have twice a week visits to the doctors, and home nursing care to take care of my catheter (a cute little think coming out of my chest with three lines (pigtails) to access all in and out activities easily (beats needle sticks by a mile). Also, the expected loss of hair occured the last 2 days, so those of you who have seen me lately, don't be surprised to see the Yul Brenner look again (now popularized by many star athletes you know). While until now, my hair was longer than any of you have seen in years, sorry most of you missed it. Since 3 is my lucky number, I am assuming that when it comes back again for the third time, it will be darker and fuller than ever!
On the sports front, my Blackhawks won their series last night in the most incredible third period I can remember, And my new favorite team, the Cav's swept again. Life is good.
I don't know if we will be doing this blog every day now, but I will be checking every day, so please keep the comments coming. Hope you all had a great Mothers Day!
Love to All,
Mike
Saturday, May 9, 2009
Dear Family and Friends,
We're home. What a great great feeling! Our heads are swimming with the speed of Mike's release from the hospital. His labs last night reported that his white cell count was more than 17,000. YEAH for those "stud" stemmies. A few days ago his count was less than 100. He seriously set hospital records on many levels...Not surprising that he exceeded expectations. Come on... it's Mike. We all know that he's a fighter and a social butterfly. I believe that part of his motivation to recover as quickly as he did was is to get back to celebrating life with all of you. I thank all of you for your part in helping to bring "MY LOVE" home. It is the most wonderful Mother's gift of all time. Thank you for the love, laughter, and encouragement. You helped make a miracle begin for our family. Happy Mother's Day to all our amazing friends who are Mothers. We honor you and wish you health and happiness.
Love, Cookie and Mike
We're home. What a great great feeling! Our heads are swimming with the speed of Mike's release from the hospital. His labs last night reported that his white cell count was more than 17,000. YEAH for those "stud" stemmies. A few days ago his count was less than 100. He seriously set hospital records on many levels...Not surprising that he exceeded expectations. Come on... it's Mike. We all know that he's a fighter and a social butterfly. I believe that part of his motivation to recover as quickly as he did was is to get back to celebrating life with all of you. I thank all of you for your part in helping to bring "MY LOVE" home. It is the most wonderful Mother's gift of all time. Thank you for the love, laughter, and encouragement. You helped make a miracle begin for our family. Happy Mother's Day to all our amazing friends who are Mothers. We honor you and wish you health and happiness.
Love, Cookie and Mike
Day + 11
To All,
It is hard to believe, but I am actually sitting at my own desk, having spent the afternoon and evening in my own family room, in my own home!!! I cannot express what a wonderful feeling it is to be back in Deerfield, and out of the hospital. I was awakened by a lovely Doctor at 8:30 this morning, and she said "how do you feel"? I said, I just woke up, but I think I feel o.k., how do you think I look on the inside? She said, "you are doing great!" She proceeded to tell me that my white count had gone up to 17,000, and my platelets had risen nicely, and that everything was going really well from their point of view (the only point of view that matters!). And that there was no reason I could not go home today, after paperwork was finished. I immediately called Cook, and asked if her taxi service would please pick me up and take me to Deerfield.
As my darling wife mentioned in yesterday's blog, what a great Mothers Day gift for both of us, and I'm not even a mother (I think I have been called one at some point in my life)! I was sorry to take her away from her luxury city abode, but I think she will adjust.
I must tell you all that this has been an incredible journey so far, and I know there is a long way to go. But, thanks to all of your phenomenal support, I have gotten through phase 1 in a very lucky way. The doc told me that I probably had less possible problems with this transplant procedure than 95% of those that go through it! That doesn't make it easy, but it sure helps to be in the top 5%! My new stud cells are really doing a great job so far. We have a lot of work in front of us, but I know we will get through it all after such a wonderful beginning.
A special "public" thank you to my dear, devoted wife, who has been there every day for me, and who remains my primary caregiver, now that we are home. She is simply the best! Also thanks to my sister Barb, and all my friends who visited and lent me their support. As I found out last time, when this disease first occured, I have an unbelievable support group of family and friends behind me, and it is humbling to witness! This blog was a great idea, and offers me a daily reminder of that very fact. I wish all of the mothers out there a great day tomorrow, and may you all be blessed with a mother of your children as wonderful as mine!!
Love to All,
Mike
It is hard to believe, but I am actually sitting at my own desk, having spent the afternoon and evening in my own family room, in my own home!!! I cannot express what a wonderful feeling it is to be back in Deerfield, and out of the hospital. I was awakened by a lovely Doctor at 8:30 this morning, and she said "how do you feel"? I said, I just woke up, but I think I feel o.k., how do you think I look on the inside? She said, "you are doing great!" She proceeded to tell me that my white count had gone up to 17,000, and my platelets had risen nicely, and that everything was going really well from their point of view (the only point of view that matters!). And that there was no reason I could not go home today, after paperwork was finished. I immediately called Cook, and asked if her taxi service would please pick me up and take me to Deerfield.
As my darling wife mentioned in yesterday's blog, what a great Mothers Day gift for both of us, and I'm not even a mother (I think I have been called one at some point in my life)! I was sorry to take her away from her luxury city abode, but I think she will adjust.
I must tell you all that this has been an incredible journey so far, and I know there is a long way to go. But, thanks to all of your phenomenal support, I have gotten through phase 1 in a very lucky way. The doc told me that I probably had less possible problems with this transplant procedure than 95% of those that go through it! That doesn't make it easy, but it sure helps to be in the top 5%! My new stud cells are really doing a great job so far. We have a lot of work in front of us, but I know we will get through it all after such a wonderful beginning.
A special "public" thank you to my dear, devoted wife, who has been there every day for me, and who remains my primary caregiver, now that we are home. She is simply the best! Also thanks to my sister Barb, and all my friends who visited and lent me their support. As I found out last time, when this disease first occured, I have an unbelievable support group of family and friends behind me, and it is humbling to witness! This blog was a great idea, and offers me a daily reminder of that very fact. I wish all of the mothers out there a great day tomorrow, and may you all be blessed with a mother of your children as wonderful as mine!!
Love to All,
Mike
Friday, May 8, 2009
Homecoming
Dear Family and Friends,
Mike is feeling okay, but is very tired tonight so he asked me to update you with the news. The Doctors are thrilled with Mike's progress. He has nearly set a record for fastest grafting of stem cells. On day 8 Mike made a huge jump in his white cell count. Today his cell count was even higher. The Doctors are preparing him to come home. They have started to wean him from the IV's and started administering the meds in pill form. He will be on the anti-rejection drugs for several months. He will be coming home tomorrow or Sunday. I never thought that I would be celebrating Mother's Day at home with Mike. This is so exciting. He told me I could pick out any card I want for Mother's Day since he can not shop. I told him to make a card for me. Is there anyone out there that doesn't know how to draw a flower? I don't think so! I know one thing for sure...this is the best present ever.
We are blessed to have you in our lives and everyday is a reminder of our good fortune. To all of you, we say thank you for your encouragement, quotes, words of wisdom, and for providing plenty of laughs. The next phase of Mike's recovery will not be as confining, so we hope to be able to spend time with you. Your love is as healing as medicine.
To all you Moms...we wish you health, happiness, and endless love. Enjoy your families and the gift of time.
We Love You,
Cookie and Mike
Mike is feeling okay, but is very tired tonight so he asked me to update you with the news. The Doctors are thrilled with Mike's progress. He has nearly set a record for fastest grafting of stem cells. On day 8 Mike made a huge jump in his white cell count. Today his cell count was even higher. The Doctors are preparing him to come home. They have started to wean him from the IV's and started administering the meds in pill form. He will be on the anti-rejection drugs for several months. He will be coming home tomorrow or Sunday. I never thought that I would be celebrating Mother's Day at home with Mike. This is so exciting. He told me I could pick out any card I want for Mother's Day since he can not shop. I told him to make a card for me. Is there anyone out there that doesn't know how to draw a flower? I don't think so! I know one thing for sure...this is the best present ever.
We are blessed to have you in our lives and everyday is a reminder of our good fortune. To all of you, we say thank you for your encouragement, quotes, words of wisdom, and for providing plenty of laughs. The next phase of Mike's recovery will not be as confining, so we hope to be able to spend time with you. Your love is as healing as medicine.
To all you Moms...we wish you health, happiness, and endless love. Enjoy your families and the gift of time.
We Love You,
Cookie and Mike
Thursday, May 7, 2009
Day + 9
Hi All,
Well, all I can say is that day + 9 was one hell of a day!! Actually, it was one of the best days I have had in a very long time. Let me explain: My doctor team entered the room midday, while my true love Cook was here (she's here every day!), and asked if we had heard the good news about my "counts"? They proceeded to tell us that my white cell count had made an extremely bold move, and was now at 2.6. I said, bewildered, doesn't that translate to 2,600? Yes, was the answer, with a big smile! Is that kind of move proof positive that my new stem cells had indeed grafted, I asked? Again, they said yes! I had been informed several times that this usually happens on days 10-12. But they said day 8 was possible, and it really did happen. Then they proceeded to lay out the new game plan based on this wonderful news: I would be taken off of all my IV medicines, and switched over to oral (pill) forms. They would then monitor all that they do daily for the next couple of days, hoping that those stud cells kept up the great work (while I adjusted to life without Daisy Mae Pole). And if that were to be the case, they might send me home over the weekend! I looked over at Cookie, and her facial expression mirrored exactly what was on my mind....total shock and elation. Forget blowing our minds, that we could be out of here in less than 3 weeks, after assuming a 4 week stay....what was really, really important was that my 21 year old stud cells were being graciously accepted by their host, me!
So I ask you all...how good of a day was this? pretty, pretty, pretty good! Anything else that transpired today now seemed rather insignificant, so I am not going into any other details. You now all know, as you read this, that a major hurdle has been jumped, and we are into the next phase of this incredible journey. Now we concentrate on getting better each and every day. And then, eventually, we hope to find out that the new me no longer includes those rotten cancer cells anymore! Sounds like a plan to me.
Love to All!
Mike
Well, all I can say is that day + 9 was one hell of a day!! Actually, it was one of the best days I have had in a very long time. Let me explain: My doctor team entered the room midday, while my true love Cook was here (she's here every day!), and asked if we had heard the good news about my "counts"? They proceeded to tell us that my white cell count had made an extremely bold move, and was now at 2.6. I said, bewildered, doesn't that translate to 2,600? Yes, was the answer, with a big smile! Is that kind of move proof positive that my new stem cells had indeed grafted, I asked? Again, they said yes! I had been informed several times that this usually happens on days 10-12. But they said day 8 was possible, and it really did happen. Then they proceeded to lay out the new game plan based on this wonderful news: I would be taken off of all my IV medicines, and switched over to oral (pill) forms. They would then monitor all that they do daily for the next couple of days, hoping that those stud cells kept up the great work (while I adjusted to life without Daisy Mae Pole). And if that were to be the case, they might send me home over the weekend! I looked over at Cookie, and her facial expression mirrored exactly what was on my mind....total shock and elation. Forget blowing our minds, that we could be out of here in less than 3 weeks, after assuming a 4 week stay....what was really, really important was that my 21 year old stud cells were being graciously accepted by their host, me!
So I ask you all...how good of a day was this? pretty, pretty, pretty good! Anything else that transpired today now seemed rather insignificant, so I am not going into any other details. You now all know, as you read this, that a major hurdle has been jumped, and we are into the next phase of this incredible journey. Now we concentrate on getting better each and every day. And then, eventually, we hope to find out that the new me no longer includes those rotten cancer cells anymore! Sounds like a plan to me.
Love to All!
Mike
Wednesday, May 6, 2009
Day + 8
Hi All,
Quick medical update: Best news was that my white cell count actually went up from the gutter today. Too soon to call, but it could be the stud cells working. Day 8 would be early (usually happens 10-12 days), but not unheard of. We'll see the next couple of days if the trend continues. Only negative was that these shots I get daily now (neupogen) which stimulate bone marrow activity, often have a side effect of causing bone pain while they work. I had some pain in my lower back, and resorted to Vicodin (Ricky, you're the expert on that). Actually got a little buzz!:) No worries about turning into Brett Farve (speaking of whom, is this getting obnoxious about another comeback, or what?). Speaking of sports, Blackhawks are down 2 to 1, but Cav's sure looked impressive! Felt terrible that Celtics and Lakers lost game 1 each (just kidding!)
Rich Gersh and Warren visited me today, which was great fun. They saw two of my female medical team members...check with them for unbiased opinion. Rich brought his backgammon set, itching for revenge from when we played a couple of years ago when I was stuck at home, and beat him badly. Between the vicodin, and feeling sorry for a great friend in such obvious mental anguish, I did let him pull out a victory! In addition, Rich suggested I try the chicken parmesan on the menu. I did so tonight, and in a real squeaker, the vote went to Rich's recipe over the Hospital version, so his reputation is secure!
Family update: brother-in-law Herb celebrated his 65th yesterday...Happy birthday to him! Also, niece Jen is home from the hospital, and doing well...we are thrilled for her and wish a continued speedy recovery.
That's all folks...keep it coming, and Love to ALL,
Mike
Quick medical update: Best news was that my white cell count actually went up from the gutter today. Too soon to call, but it could be the stud cells working. Day 8 would be early (usually happens 10-12 days), but not unheard of. We'll see the next couple of days if the trend continues. Only negative was that these shots I get daily now (neupogen) which stimulate bone marrow activity, often have a side effect of causing bone pain while they work. I had some pain in my lower back, and resorted to Vicodin (Ricky, you're the expert on that). Actually got a little buzz!:) No worries about turning into Brett Farve (speaking of whom, is this getting obnoxious about another comeback, or what?). Speaking of sports, Blackhawks are down 2 to 1, but Cav's sure looked impressive! Felt terrible that Celtics and Lakers lost game 1 each (just kidding!)
Rich Gersh and Warren visited me today, which was great fun. They saw two of my female medical team members...check with them for unbiased opinion. Rich brought his backgammon set, itching for revenge from when we played a couple of years ago when I was stuck at home, and beat him badly. Between the vicodin, and feeling sorry for a great friend in such obvious mental anguish, I did let him pull out a victory! In addition, Rich suggested I try the chicken parmesan on the menu. I did so tonight, and in a real squeaker, the vote went to Rich's recipe over the Hospital version, so his reputation is secure!
Family update: brother-in-law Herb celebrated his 65th yesterday...Happy birthday to him! Also, niece Jen is home from the hospital, and doing well...we are thrilled for her and wish a continued speedy recovery.
That's all folks...keep it coming, and Love to ALL,
Mike
Tuesday, May 5, 2009
Day + 7
Hi All,
This will be brief, as it is late and I am sleepy. I have hit "rock bottom" on the counts, so that goal has been accomplished. Now we wait probably another 5 days, and hope to start in the other direction, as the "stud cells" (my new name for them) start to graft and do their thing. Still no major problems. In one regard, it is hard to believe I have been in here for 15 days already.
I hope that is 50% or more time put in, but we'll have to wait and see about that. One introspective note: I think I have recaptured some of the patience I used to have in my youth. I learned a great deal of patience in the Army, in the early '70's. I kept it for years, but it slowly waned as the decades passed, and I no longer considered myself a truly patient man anymore (I think Cookie, Mark, and several others will back me up on that). But I believe this experience has forced me to learn that valuable tool all over again!
One last note: I was taken aback by the many comments supporting Cookie and her quick KO in the boxing match. It seemed to make many of you very happy. Is this a sexist response, I wonder? Could be! Please examine your motives, and get back to me on that.
Goodnight, and love to All.
Mike
This will be brief, as it is late and I am sleepy. I have hit "rock bottom" on the counts, so that goal has been accomplished. Now we wait probably another 5 days, and hope to start in the other direction, as the "stud cells" (my new name for them) start to graft and do their thing. Still no major problems. In one regard, it is hard to believe I have been in here for 15 days already.
I hope that is 50% or more time put in, but we'll have to wait and see about that. One introspective note: I think I have recaptured some of the patience I used to have in my youth. I learned a great deal of patience in the Army, in the early '70's. I kept it for years, but it slowly waned as the decades passed, and I no longer considered myself a truly patient man anymore (I think Cookie, Mark, and several others will back me up on that). But I believe this experience has forced me to learn that valuable tool all over again!
One last note: I was taken aback by the many comments supporting Cookie and her quick KO in the boxing match. It seemed to make many of you very happy. Is this a sexist response, I wonder? Could be! Please examine your motives, and get back to me on that.
Goodnight, and love to All.
Mike
Stem Cell Transplant Bond Style
Hi Family and Friends,
Hope all of you are well and enjoying the beautiful weather. Mike is doing okay. He walked up and down the corridor today. He and Daisy Mae Pole walked with "attitude". Speaking of walking...I walked early this morning to Millenium Park. I found myself surrounded by a "legion of workers", with hardly any room to move. It felt like it might turn into a "mosh pit" and that was scary. I needed a plan. Suddenly, I remembered the days of living in the city and how to "walk the walk" and I kicked into gear. What that means is that I went into "ZOOM MODE". Let me explain..."Zoom Mode" is when you use your body like a racecar. It is essential that you weave in and out of the crowd, and that you do not use a signal to change lanes. It is important that you make very little to no eye contact with other walkers to convince them that you really mean business. If someone seems to resist your "zooming"...it is acceptable to make THE sound. Repeating "zoom zoom" reinforces your position, and scares people away. Wow, I sure got to the park quickly this morning. Can't wait until tomorrow. Just hope I don't run into the landscapers again. Being a flower stalker and a "zoomer" might get me banned from Starbucks.
You won't believe this next bit of news. Mike has a nurse who is named "Cherish". Yep, My Love and Cherish are on "The Mike Team". Now, doesn't that sound like Mike is in the James Bond Stem Cell Transplant unit? His incredible team is bringing him one day closer to recovery. I guess I shouldn't talk about names...in our family we have a Cookie and a Muffin. Isn't that too sweet? Thank you for taking this journey with us. You line the road with light to guide the way. Thank you-
Love, Cookie
Hope all of you are well and enjoying the beautiful weather. Mike is doing okay. He walked up and down the corridor today. He and Daisy Mae Pole walked with "attitude". Speaking of walking...I walked early this morning to Millenium Park. I found myself surrounded by a "legion of workers", with hardly any room to move. It felt like it might turn into a "mosh pit" and that was scary. I needed a plan. Suddenly, I remembered the days of living in the city and how to "walk the walk" and I kicked into gear. What that means is that I went into "ZOOM MODE". Let me explain..."Zoom Mode" is when you use your body like a racecar. It is essential that you weave in and out of the crowd, and that you do not use a signal to change lanes. It is important that you make very little to no eye contact with other walkers to convince them that you really mean business. If someone seems to resist your "zooming"...it is acceptable to make THE sound. Repeating "zoom zoom" reinforces your position, and scares people away. Wow, I sure got to the park quickly this morning. Can't wait until tomorrow. Just hope I don't run into the landscapers again. Being a flower stalker and a "zoomer" might get me banned from Starbucks.
You won't believe this next bit of news. Mike has a nurse who is named "Cherish". Yep, My Love and Cherish are on "The Mike Team". Now, doesn't that sound like Mike is in the James Bond Stem Cell Transplant unit? His incredible team is bringing him one day closer to recovery. I guess I shouldn't talk about names...in our family we have a Cookie and a Muffin. Isn't that too sweet? Thank you for taking this journey with us. You line the road with light to guide the way. Thank you-
Love, Cookie
Monday, May 4, 2009
Day + 6
Hi All,
After a day off blogging, I thought I would enter a few words. But how good is Cookie getting at this?!! She is getting more creative by the day, my little drooling Gardener. But I must warn you just a little bit, that I see a tendency to expand on the truth just a tad, for humorous effect. I think she got this from brother Brook. But I know you all are enjoying her new-found outlet for creativity, and that's all that matters.
I have slowed down somewhat, as expected. However, just fatigue is o.k. with me. The day goes faster, the more you sleep! We did have fun with the Wii again this afternoon. Down 2 games to one, I made a comeback in Tennis to win the series 3 to 2. I was a little shocked when Cook quickly KO'd me in boxing...that girl is tougher than you think. But don't believe I was maniacal when I returned the favor...through a lifetime of sports, I learned to be a gracious winner and loser!
I will go on record, now that the Bulls are gone, that I am now rooting for the Cavaliers to go all the way (good luck Don C.). And I am also enjoying the Blackhawks' resurgence. My Cubs are on the verge of their first 4 game win streak, so don't get too cocky about St. Louis just yet (long way to go, Mark!). As Cook said, keep the comments coming....we just love it!
Love to all!
Mike
After a day off blogging, I thought I would enter a few words. But how good is Cookie getting at this?!! She is getting more creative by the day, my little drooling Gardener. But I must warn you just a little bit, that I see a tendency to expand on the truth just a tad, for humorous effect. I think she got this from brother Brook. But I know you all are enjoying her new-found outlet for creativity, and that's all that matters.
I have slowed down somewhat, as expected. However, just fatigue is o.k. with me. The day goes faster, the more you sleep! We did have fun with the Wii again this afternoon. Down 2 games to one, I made a comeback in Tennis to win the series 3 to 2. I was a little shocked when Cook quickly KO'd me in boxing...that girl is tougher than you think. But don't believe I was maniacal when I returned the favor...through a lifetime of sports, I learned to be a gracious winner and loser!
I will go on record, now that the Bulls are gone, that I am now rooting for the Cavaliers to go all the way (good luck Don C.). And I am also enjoying the Blackhawks' resurgence. My Cubs are on the verge of their first 4 game win streak, so don't get too cocky about St. Louis just yet (long way to go, Mark!). As Cook said, keep the comments coming....we just love it!
Love to all!
Mike
Day 6
I've been thinking about the various ways that we are available to us to communicate with one another. Between house and cell phones, text messages, blogs, e-mails, and Facebook accounts, etc. , we almost always have a way to connect to each other. Sometimes, this may not seem like such a good idea...but, lately, I have come to have a new appreciation for this ability. Sitting in the room at the hospital has been tolerable due to the various methods available to us to bring the outside world in. You have given us inspiration, and provided us with a great amount of laughter. A heartfelt thanks to all of you bloggers, phone callers, e-mailers, text messengers, and Facebook users.
Mike is doing all right. He has slowed down and is tired today. He is resting comfortably. This is all part of the process. Bridgett, the Recreational Therapist, came in today. We "Wii-ed". I have no idea how to refer to this technology in the past tense. We played tennis and then switched to boxing. First, I KO'd Mike...then he KO'd me. I wouldn't say that we enjoyed doing this to each other...but I did notice him smiling like a "crazy person", and mumbling something about "payback".
I took a walk on Michigan Ave. today. As I walked into Starbucks, I saw a small huddle of people. I swear I heard them say..."There she's is...Crazing Flower Lady!" I think Mari is right...I now have a reputation as a flower stalker. I think that I need an intervention. At the least, I need one of the Healy's Irish prayers...please hurry!
Love, Cookie
Mike is doing all right. He has slowed down and is tired today. He is resting comfortably. This is all part of the process. Bridgett, the Recreational Therapist, came in today. We "Wii-ed". I have no idea how to refer to this technology in the past tense. We played tennis and then switched to boxing. First, I KO'd Mike...then he KO'd me. I wouldn't say that we enjoyed doing this to each other...but I did notice him smiling like a "crazy person", and mumbling something about "payback".
I took a walk on Michigan Ave. today. As I walked into Starbucks, I saw a small huddle of people. I swear I heard them say..."There she's is...Crazing Flower Lady!" I think Mari is right...I now have a reputation as a flower stalker. I think that I need an intervention. At the least, I need one of the Healy's Irish prayers...please hurry!
Love, Cookie
Sunday, May 3, 2009
One Fine Day
Hi Family and Friends,
Mike is doing well. He's a little less energetic today, but this is to be expected since his white counts are low. This is a good time for his body to rest and to gain srength. His spirits are high, and even though The Bulls didn't win last night's game, he is proud of the team for their exciting performance in the play-offs. We're taking one day at a time and thinking that each new day is a day closer to recovery. We appreciate your contact with us and we look forward to hearing from you. Enjoy the beautiful days ahead. You have given us immense strength with your encouragement via telephone calls and blogs. We are so lucky to have you in our lives. We Love You-
Cookie and Mike
Mike is doing well. He's a little less energetic today, but this is to be expected since his white counts are low. This is a good time for his body to rest and to gain srength. His spirits are high, and even though The Bulls didn't win last night's game, he is proud of the team for their exciting performance in the play-offs. We're taking one day at a time and thinking that each new day is a day closer to recovery. We appreciate your contact with us and we look forward to hearing from you. Enjoy the beautiful days ahead. You have given us immense strength with your encouragement via telephone calls and blogs. We are so lucky to have you in our lives. We Love You-
Cookie and Mike
Saturday, May 2, 2009
Gardens
This morning I went to Walgreens located near my hotel. On the way, there was a flurry of activity as many workers were conferring about the planting they were doing. Michigan Ave. is populated with many planters that are bursting with color and spring flowers. The workers were busy planting summer flowers (I happen to know the difference between spring and summer flowers). I was so excited to see gardening activity, that I stopped to watch the workers as they busily set their flowers in the planters and began to dig in the dirt. I so wanted to join them in this endeavor, and know that I made a spectacle of myself by staring longingly at the flowers being placed into the soil. I think that I may have scared the workmen when I took a seat near the window of Starbucks so I could continue to watch them work on their planting. I noticed them looking at me with sideways glances and I thought "how could I be making them feel uncomfortable?" By then, I realized that I was drooling...(just a little), and smiling like a Cheshire Cat. I am so happy for SPRING to finally be here, and for the profusion of color that surrounds me. It has been a very long winter. I'm missing the spring flowers in our garden, so I am constantly looking at the beautiful planters on Michigan Ave. to soak up all the color. Finally...Spring is here and we can welcome sunshine and the re-birth of the earth's treasures.
I began thinking of Mike and the stem cell transplant and realized that there is an obvious comparison to the planting of a garden. I see Mike as the earth. The stem cells are a plant that has been placed in the soil. Now that the plant has been planted in the earth, it needs to be cared for to take root and to grow into a healthy flower. It must be fed all the nutrients that will make it thrive. Family and Friends represent the nutrients of life. YOU are making the soil rich with your love and prayers. Together, we are tending to our plant and will nuture it, protect it, and love it. Mike is like an unique plant that is about to flower. What a miracle life is...
Another flower is emerging. It is called "Jen". Both of the flowers are the beginning of a garden. I can tell that THIS will be my "all time" favorite garden.
Thanks for Caring-
Love You,
XO Cookie
I began thinking of Mike and the stem cell transplant and realized that there is an obvious comparison to the planting of a garden. I see Mike as the earth. The stem cells are a plant that has been placed in the soil. Now that the plant has been planted in the earth, it needs to be cared for to take root and to grow into a healthy flower. It must be fed all the nutrients that will make it thrive. Family and Friends represent the nutrients of life. YOU are making the soil rich with your love and prayers. Together, we are tending to our plant and will nuture it, protect it, and love it. Mike is like an unique plant that is about to flower. What a miracle life is...
Another flower is emerging. It is called "Jen". Both of the flowers are the beginning of a garden. I can tell that THIS will be my "all time" favorite garden.
Thanks for Caring-
Love You,
XO Cookie
Day + 4
Hi All,
Well, our crazy ride with da Bulls is finally over...I know it is a letdown for many, but I have to say honestly that I am not truly all that upset. I am very proud of the team and their effort throughout the series, and they really grew individually and as a unit immensely. I know in "coachspeak", there are not supposed to be moral victories, but that's how I feel anyway! They gave us great entertainment, and lots to talk about throughout. I salute them all!
Otherwise, I have little to report tonight. Thanks to niece Beth for the visit today, and her expert help on spreadsheets! My condition remains mostly unchanged, and that's a good thing. Thanks for all your encouragement as always!
Love to All,
Mike
Well, our crazy ride with da Bulls is finally over...I know it is a letdown for many, but I have to say honestly that I am not truly all that upset. I am very proud of the team and their effort throughout the series, and they really grew individually and as a unit immensely. I know in "coachspeak", there are not supposed to be moral victories, but that's how I feel anyway! They gave us great entertainment, and lots to talk about throughout. I salute them all!
Otherwise, I have little to report tonight. Thanks to niece Beth for the visit today, and her expert help on spreadsheets! My condition remains mostly unchanged, and that's a good thing. Thanks for all your encouragement as always!
Love to All,
Mike
Friday, May 1, 2009
Day + 3
Hi All,
Everyone recovered from last nights' game yet? Can't wait for Sat. nite in Boston!
Not a lot new, so I thought I would give a quick medical update for those not in the know about these things, and what we expect to happen down the road here. I mentioned that I had been feeling very good, and that my blood "counts" were remaining high. That all changed today, but in a way that was totally foreseeable. Basically, this procedure starts with 6 days of high Chemo doses, a day off, the transplant, and then a wait and see posture. The doc's totally expect your counts to bottom out, as the chemo does what it is supposed to do, which is pretty much destroy your immune system, and then let the new stem cells hopefully start building it back up gradually, as they "graft". That's the quick version of the entire deal. So they were waiting for me to kind of wipe out, which started today. My view is that I knew it was coming, and this next week to ten days is where I have to tough it out a little, and hope that nothing serious happens infection-wise, or with side effects. I am mentally prepared for this, so please do not worry unneccessarily. I may not feel like writing you all each and every day, but please feel free to write me back anyway. As far as I am concerned, now we are "getting it on" and I look forward to starting, so I can get through it and come out the other side on the road to recovery.
That said, I will bid you all a good night. Keep those positive thoughts coming, and also keep our niece Jen in your prayers for a speedy recovery from her surgery!
Love to ALL
Mike
Everyone recovered from last nights' game yet? Can't wait for Sat. nite in Boston!
Not a lot new, so I thought I would give a quick medical update for those not in the know about these things, and what we expect to happen down the road here. I mentioned that I had been feeling very good, and that my blood "counts" were remaining high. That all changed today, but in a way that was totally foreseeable. Basically, this procedure starts with 6 days of high Chemo doses, a day off, the transplant, and then a wait and see posture. The doc's totally expect your counts to bottom out, as the chemo does what it is supposed to do, which is pretty much destroy your immune system, and then let the new stem cells hopefully start building it back up gradually, as they "graft". That's the quick version of the entire deal. So they were waiting for me to kind of wipe out, which started today. My view is that I knew it was coming, and this next week to ten days is where I have to tough it out a little, and hope that nothing serious happens infection-wise, or with side effects. I am mentally prepared for this, so please do not worry unneccessarily. I may not feel like writing you all each and every day, but please feel free to write me back anyway. As far as I am concerned, now we are "getting it on" and I look forward to starting, so I can get through it and come out the other side on the road to recovery.
That said, I will bid you all a good night. Keep those positive thoughts coming, and also keep our niece Jen in your prayers for a speedy recovery from her surgery!
Love to ALL
Mike
Thursday, April 30, 2009
Day +2
Hi All,
I was not sure I had enough in me left to write tonight after watching a gut-wrenching, four hour 3 overtime Bulls game, but the "BABY BULLS" beat the mighty Celtics, and forced game 7, and I am totally amazed and and stunned, as are all of you who I know watched this instant classic!
I'll let you get all the rest from the media, but I really find the Bulls to be inspirational in their efforts, and will be using them as a role model for my own playoffs. Needless to say, I have never watched more NBA action than this postseason, and it has really helped pass the evenings by quickly. I watched the beginning of the game with Mike Weiner, and then heard at half time from my friend Brent in New Zealand. What a connected world we live in, huh?
Meanwhile, today was also good and uneventful. My Love Cook brought me a Potbelly's sandwich for lunch, what a treat! (Have I mentioned how much I like Hospital food?) Mylove 2 took great care of me as usual, and I got in the all important shower and shave today! I figure that is of greater benefit to my caregivers and Cook than me, but it really does feel good!
(Denise...yes I have had 2 male nurses, Mark and Bruce, and neither has shown much interest in me, but they are not all babes, for the record.)
Well, it is getting late, and I am emotionally drained, so goodnight to you all, and thanks as always for reading and responding! Love to all.
Mike
I was not sure I had enough in me left to write tonight after watching a gut-wrenching, four hour 3 overtime Bulls game, but the "BABY BULLS" beat the mighty Celtics, and forced game 7, and I am totally amazed and and stunned, as are all of you who I know watched this instant classic!
I'll let you get all the rest from the media, but I really find the Bulls to be inspirational in their efforts, and will be using them as a role model for my own playoffs. Needless to say, I have never watched more NBA action than this postseason, and it has really helped pass the evenings by quickly. I watched the beginning of the game with Mike Weiner, and then heard at half time from my friend Brent in New Zealand. What a connected world we live in, huh?
Meanwhile, today was also good and uneventful. My Love Cook brought me a Potbelly's sandwich for lunch, what a treat! (Have I mentioned how much I like Hospital food?) Mylove 2 took great care of me as usual, and I got in the all important shower and shave today! I figure that is of greater benefit to my caregivers and Cook than me, but it really does feel good!
(Denise...yes I have had 2 male nurses, Mark and Bruce, and neither has shown much interest in me, but they are not all babes, for the record.)
Well, it is getting late, and I am emotionally drained, so goodnight to you all, and thanks as always for reading and responding! Love to all.
Mike
Wednesday, April 29, 2009
Day + 1
Hi to all,
The old saying you all have heard..."today is the first day of the rest of your life" has taken on a new meaning for me today. With transplant day being day "0" on the hospital calendar, today is truly day +1 for me, and the count goes on from there, all positive numbers. They may not all be great days, but they all will lead to better ones, and that's what counts!
Still doing fine, and had a relaxing day. Cook, Kim and Grandma Dee stopped by to visit. A special thank you to Kimmers for all her incredible efforts on our behalf. She has been doing amazing things around the house in our absence, and she is the driving force behind this fabulous source of communication between us all on the blog. She is heading out today for a new adventure with Habitat for Humanity for the summer, and we will miss her, and wish her well!
Cook and I started watching Planet Earth today...very cool (thanks Sabins). After missing one day, I got back to some exercise today. Had a short workout with Bridgette (aka Wii girl) in the room with some resistance therapy of hers, and later in the day I got my mile walk in with Daisy Mae-pole. It felt good to move around again, and I hope I can continue that daily.
Not much else to say other than I really really enjoy all your comments, and they are great to read daily...keep up the good work. Thanks for all the support!
Love,
Mike
The old saying you all have heard..."today is the first day of the rest of your life" has taken on a new meaning for me today. With transplant day being day "0" on the hospital calendar, today is truly day +1 for me, and the count goes on from there, all positive numbers. They may not all be great days, but they all will lead to better ones, and that's what counts!
Still doing fine, and had a relaxing day. Cook, Kim and Grandma Dee stopped by to visit. A special thank you to Kimmers for all her incredible efforts on our behalf. She has been doing amazing things around the house in our absence, and she is the driving force behind this fabulous source of communication between us all on the blog. She is heading out today for a new adventure with Habitat for Humanity for the summer, and we will miss her, and wish her well!
Cook and I started watching Planet Earth today...very cool (thanks Sabins). After missing one day, I got back to some exercise today. Had a short workout with Bridgette (aka Wii girl) in the room with some resistance therapy of hers, and later in the day I got my mile walk in with Daisy Mae-pole. It felt good to move around again, and I hope I can continue that daily.
Not much else to say other than I really really enjoy all your comments, and they are great to read daily...keep up the good work. Thanks for all the support!
Love,
Mike
My "New Guy"
I am watching Mike for subtle changes that indicate that the 21 year old donor is emerging. What I noticed upon entering his room today is that he was listening to rap music...knew all the words and greeted me with "Yo! Whazup?" I must admit that it started me thinking how I should respond to his possible youthful changes. The big question is should I "play along?", or should I call Bonnie G. to intervene? What I noticed next is that Mike is swaggering when he walks...this is just a little funny as he is still wearing scrubs. Right now, he is watching MTV and singing along. He asked me if I wanted to watch "Real World"...I thought we were living "real world", but he told me that it's a reality show. He said that he can't wait to get out of the hospital and go "clubbing" with me. Don't laugh...he wants ALL OF YOU to meet him, too. I don't think we are going to be able to keep up with this new MIKE...but, I'm sure gonna try and know that you will, too.
Well Friends, thanks for keeping us laughing and making us feel loved. Everyday we thank our lucky stars to be your family and friends.
On a serious note...Mike is doing well. His blood counts are holding, so far. Thanks for your thoughts and prayers.
Well Friends, thanks for keeping us laughing and making us feel loved. Everyday we thank our lucky stars to be your family and friends.
On a serious note...Mike is doing well. His blood counts are holding, so far. Thanks for your thoughts and prayers.
Tuesday, April 28, 2009
Day 0, a new start!
To all of my dear friends and family:
It has been a long, wonderful, and very eventful day for many reasons! As many have told me, I have a new Birthday to celebrate. I'm not sure I quite have a handle on it yet, but the good news is that my donor came through, and I was given my new stem cells this morning. All has gone smoothly so far, and I am feeling pretty good. They tell me the next week will probably be the roughest, but I am prepared for almost anything, I think. The good news is that the only thing I know about the donor is that it was a 21 year old male. So not only do I get young again, but I get to keep my manhood (forget the sensitive side...etc.)! Cookie is already concerned about keeping up with me! Speaking of my true love, let me note how wonderful she has been, and I sometimes think this is harder for her than for me. Between her and my sister Barbara, they are logging lots of hours sitting around here, and are simply the best!
Speaking of Barb, this day has been great for another very important person in our family. Some of you know of my niece Jennifer (married to Barb's son, nephew David) and her long standing battle with cancer. Well, ironically,today was surgery day to remove a tumor from her, the fourth surgery she has endured in this fight. We got word she came through with flying colors, and the surgery was much less invasive than they thought it might be. Imagine how relieved Barb and her family are today. (Jen, Dave, Sandy and Len...I am so happy for you today as well, and thank you for all your support in the midst of your battle).
The day could have ended totally perfectly, if only I had not just watched my Bulls lose in another overtime heartbreaker in Boston! What a game, and what a series...I am proud of them to for their spunk against great odds.
The fact is that I remain overwhelmed by many things today: The actual science of what has been done for me is amazing and hard to grasp. And it all has been made so much easier due to the incredible support of all of you reading this now. I still have not figured out what I ever did to deserve all the wishes, love, and prayers that I have received every day. I am so lucky to have all of you in my life, and words will never express my gratitude.
I think it's time to rest for the night....love to you all!
Mike
It has been a long, wonderful, and very eventful day for many reasons! As many have told me, I have a new Birthday to celebrate. I'm not sure I quite have a handle on it yet, but the good news is that my donor came through, and I was given my new stem cells this morning. All has gone smoothly so far, and I am feeling pretty good. They tell me the next week will probably be the roughest, but I am prepared for almost anything, I think. The good news is that the only thing I know about the donor is that it was a 21 year old male. So not only do I get young again, but I get to keep my manhood (forget the sensitive side...etc.)! Cookie is already concerned about keeping up with me! Speaking of my true love, let me note how wonderful she has been, and I sometimes think this is harder for her than for me. Between her and my sister Barbara, they are logging lots of hours sitting around here, and are simply the best!
Speaking of Barb, this day has been great for another very important person in our family. Some of you know of my niece Jennifer (married to Barb's son, nephew David) and her long standing battle with cancer. Well, ironically,today was surgery day to remove a tumor from her, the fourth surgery she has endured in this fight. We got word she came through with flying colors, and the surgery was much less invasive than they thought it might be. Imagine how relieved Barb and her family are today. (Jen, Dave, Sandy and Len...I am so happy for you today as well, and thank you for all your support in the midst of your battle).
The day could have ended totally perfectly, if only I had not just watched my Bulls lose in another overtime heartbreaker in Boston! What a game, and what a series...I am proud of them to for their spunk against great odds.
The fact is that I remain overwhelmed by many things today: The actual science of what has been done for me is amazing and hard to grasp. And it all has been made so much easier due to the incredible support of all of you reading this now. I still have not figured out what I ever did to deserve all the wishes, love, and prayers that I have received every day. I am so lucky to have all of you in my life, and words will never express my gratitude.
I think it's time to rest for the night....love to you all!
Mike
Recipe for a Transplant
Well, today is the BIG day. I've given the transplant idea a great deal of thought and decided that it should be approached as a recipe. So here it goes "Michael Dear"...
Preparation:
First of all, please make sure to groom yourself (shower and shave). Next, make sure that you put on your dress scrubs, fresh white socks and your "really cool" slippers. There is nothing like a well dressed man to give a great first impression.
Ingredients:
Practice your best smile. A handshake is not appropriate here since you will be meeting the essence of the donor in a bag. The smile is for you and me...and Mylove and the transplant team.
Use your best (lower decibel) voice to proclaim your love and gratefulness to "said" donor. I will join the chant.
Directions:
Think positive thoughts while blending the mixture of stem cells into your body. Think health, strength, and determination. Mentally welcome the cells into your body, making a spiritual connection to the cells that are bound and determined to make you a better golfer, an avid shopper, a better basketball player, and a man who is in touch with his feminine side.
Consult the hospital prayer book for the "Stem Cell Transplant" prayer.
NOTE: You don't have to change a thing about yourself. I REALLYlove you just the way you are.
Dear Friends,
Thank you for all your comments. We really love reading them. It is a reminder of how lucky we are to have you in our lives. Today is the beginning of our new life together. May we have many years of laughter, love, and celebrations with all of you. We Love you. Cookie & Mike
Preparation:
First of all, please make sure to groom yourself (shower and shave). Next, make sure that you put on your dress scrubs, fresh white socks and your "really cool" slippers. There is nothing like a well dressed man to give a great first impression.
Ingredients:
Practice your best smile. A handshake is not appropriate here since you will be meeting the essence of the donor in a bag. The smile is for you and me...and Mylove and the transplant team.
Use your best (lower decibel) voice to proclaim your love and gratefulness to "said" donor. I will join the chant.
Directions:
Think positive thoughts while blending the mixture of stem cells into your body. Think health, strength, and determination. Mentally welcome the cells into your body, making a spiritual connection to the cells that are bound and determined to make you a better golfer, an avid shopper, a better basketball player, and a man who is in touch with his feminine side.
Consult the hospital prayer book for the "Stem Cell Transplant" prayer.
NOTE: You don't have to change a thing about yourself. I REALLYlove you just the way you are.
Dear Friends,
Thank you for all your comments. We really love reading them. It is a reminder of how lucky we are to have you in our lives. Today is the beginning of our new life together. May we have many years of laughter, love, and celebrations with all of you. We Love you. Cookie & Mike
Monday, April 27, 2009
The Day of Rest (no reference to G_D)
Hi all,
Here I am at day -1 (we count funny here, minus days till transplant day which is day 0, then on from there). This is called the day of rest...no more Chemo, and preparation for tomorrow. I have a little less energy, but no real problems as yet. (Will not be mentioning personal functions ever again after much poor feedback, especially from women.) Only "inconvenience" is that I am now permanently attached to my girl Daisy May Pole 24/7 to receive stuff called pro-graft that helps with rejection issues. But we went for our usual 1 mile walk together last night, and I must admit she has a great set of "wheels"!
I forgot to mention a couple of days ago a cute anecdote: I got a visit from a Rabbi, who brought in a little bag of Challah rolls and Kosher Grape Juice for the sabbath. Cookie and I said the two appropriate prayers that night for Shabat, and it was very warm and fuzzy. Can't cover too many bases on the prayer front, right? It got me wondering if, after the transplant, I will qualify to be called a "born again Jew"?
Speaking of tomorrow, I still know nothing about my donor. We had a few laughs when one nurse told me it is possible, if not same sex, to transfer over those chromosones in the new blood. If I start exhibiting my more sensitive side, and yearn to cook like Rich, and shop like Cookie, you will all understand, I trust.
Someone else mentioned that tomorrow will be a new Birthday for me, which I guess makes a lot of sense. Not good planning to have 2 birthdays in the same month, but oh well.. Since we are all communicating on computers, I decided I would liken it to having my hard drive replaced! Hope I get rid of things on the prior drive I could never erase. Bet some of you hope for the same.
I guess that's all my rambling for now. Loving hearing from you all, it puts laughter and joy in my heart. Love to you all!
Mike
Here I am at day -1 (we count funny here, minus days till transplant day which is day 0, then on from there). This is called the day of rest...no more Chemo, and preparation for tomorrow. I have a little less energy, but no real problems as yet. (Will not be mentioning personal functions ever again after much poor feedback, especially from women.) Only "inconvenience" is that I am now permanently attached to my girl Daisy May Pole 24/7 to receive stuff called pro-graft that helps with rejection issues. But we went for our usual 1 mile walk together last night, and I must admit she has a great set of "wheels"!
I forgot to mention a couple of days ago a cute anecdote: I got a visit from a Rabbi, who brought in a little bag of Challah rolls and Kosher Grape Juice for the sabbath. Cookie and I said the two appropriate prayers that night for Shabat, and it was very warm and fuzzy. Can't cover too many bases on the prayer front, right? It got me wondering if, after the transplant, I will qualify to be called a "born again Jew"?
Speaking of tomorrow, I still know nothing about my donor. We had a few laughs when one nurse told me it is possible, if not same sex, to transfer over those chromosones in the new blood. If I start exhibiting my more sensitive side, and yearn to cook like Rich, and shop like Cookie, you will all understand, I trust.
Someone else mentioned that tomorrow will be a new Birthday for me, which I guess makes a lot of sense. Not good planning to have 2 birthdays in the same month, but oh well.. Since we are all communicating on computers, I decided I would liken it to having my hard drive replaced! Hope I get rid of things on the prior drive I could never erase. Bet some of you hope for the same.
I guess that's all my rambling for now. Loving hearing from you all, it puts laughter and joy in my heart. Love to you all!
Mike
Sunday, April 26, 2009
Step one done
Hi all,
As I sit here awaiting the arrival of the real mylove (Cookie of course), I thought I would give a quick update. I have just completed my final Chemo treatment, and that seems to be a milestone to me. Step 1 is over, and it is on to the transplant on Tuesday (I get Monday off for good behavior). Really can't complain too much about the first 6 days...only minor issues. The big news this morning was I got permission to take a real shower!! Amazing how you appreciate the little things in life at times like this (that includes a good BM!). I'm sure that the shower will not only make me feel better, but be good news for all who enter my room. One interesting task I have today, starting a half hour before the treatment, and lasting for 6 straight hours (I am almost 3 hours into it) is the job of sucking on ice cubes non-stop for that span. This is called kryo therapy for those of us in the know, and is intended to constrict the blood vessels in the mouth to keep out the drug I got today from entering that area and causing mouth sores. (Don't want to get too graphic, but I thought that was interesting.)
Luckily, this is a time of lots of sports on TV, so I usually can entertain myself that way. In fact the Bulls game just started....GO BULLS! Hope all you football fans got your wishes on draft day. What's up with the Cowboys you Dallas people? How about da Bears getting a real quarterback?
The real Mylove, Kim and Grandma Dee just arrived so I will sign off for now. Love to all!
As I sit here awaiting the arrival of the real mylove (Cookie of course), I thought I would give a quick update. I have just completed my final Chemo treatment, and that seems to be a milestone to me. Step 1 is over, and it is on to the transplant on Tuesday (I get Monday off for good behavior). Really can't complain too much about the first 6 days...only minor issues. The big news this morning was I got permission to take a real shower!! Amazing how you appreciate the little things in life at times like this (that includes a good BM!). I'm sure that the shower will not only make me feel better, but be good news for all who enter my room. One interesting task I have today, starting a half hour before the treatment, and lasting for 6 straight hours (I am almost 3 hours into it) is the job of sucking on ice cubes non-stop for that span. This is called kryo therapy for those of us in the know, and is intended to constrict the blood vessels in the mouth to keep out the drug I got today from entering that area and causing mouth sores. (Don't want to get too graphic, but I thought that was interesting.)
Luckily, this is a time of lots of sports on TV, so I usually can entertain myself that way. In fact the Bulls game just started....GO BULLS! Hope all you football fans got your wishes on draft day. What's up with the Cowboys you Dallas people? How about da Bears getting a real quarterback?
The real Mylove, Kim and Grandma Dee just arrived so I will sign off for now. Love to all!
Saturday, April 25, 2009
What's up with Mylove?
We have a situation here that gets very confusing. I called Mike to see how he was doing and he started talking about the great people who are taking care of him. He referred to his favorite nurse as Mylove. I really have never been the jealous type, but I was a little taken aback by his referral to his nurse as Mylove...I thought that I WAS HIS LOVE. When I suggested that he might be referring to his nurse in a more intimate manner than was acceptable, he told me that her name is really Mylove. After several questions on my part, all reverting back to REALLY? I met the infamous Mylove and she is as sweet as her name. Now the hard part...Please try to remember that Mike is talking about his nurse and not me when he tells you about Mylove. I will give up my title (My LOVE) for now in order to avoid confusion, but as soon as Mike gets home...I WANT MY TITLE BACK! Mike loves all your comments. So do I. Be Well!
LOVE,
Cookie
AKA The former "My LOVE"
LOVE,
Cookie
AKA The former "My LOVE"
Friday, April 24, 2009
Hi All,
Well, I know the suspense is killing some of you, so here's the golf update: I misinformed you due to Wii ignorance. I did not wind up playing against Tiger, I WAS TIGER. Meanwhile, I was playing against Natalie Gulbus (the therapist is blonde also), and admittedly was not Tigeresque! This game is harder than the real thing! I won't talk about the couple of maximum score holes (11 is easy with three balls in the water), but on a positive note, I did have an eagle (150 yd.'s that flew into the cup on a par 4), and a birdie. We played TPC Sawgrass, which I know some of you are familiar with (the golf group, and the Enro team from a long ago sales meeting, when I played it twice...remember Lonnie?) After my therapist had to leave, I played both players to finish the nine, and on the famous 17th Island green, the babe hit one in the water long, and then proceeded to have a hole in one off the tee, for a PAR!
Only walked a mile today, as it was really hot in here, and I didn't want to gross everyone out, since I still can only sponge bathe! Treatments are still not a problem, thank goodness, and I remain pretty strong. Every day like that is a very good day. Thanks for all your posts, it's fun to read.
To other rookie bloggers who may be having trouble responding, here's a tip: Click on "Comments" under our entry, then you scroll down to the white box to enter a post. There is a drop down window below it. If you do not have a Google account (not necessary), select the "anonymous" in the drop down. Then just type in the big white box, and remember to sign it, so I will know who it came from.
Love to you all, and I will be in touch.
Mike
Well, I know the suspense is killing some of you, so here's the golf update: I misinformed you due to Wii ignorance. I did not wind up playing against Tiger, I WAS TIGER. Meanwhile, I was playing against Natalie Gulbus (the therapist is blonde also), and admittedly was not Tigeresque! This game is harder than the real thing! I won't talk about the couple of maximum score holes (11 is easy with three balls in the water), but on a positive note, I did have an eagle (150 yd.'s that flew into the cup on a par 4), and a birdie. We played TPC Sawgrass, which I know some of you are familiar with (the golf group, and the Enro team from a long ago sales meeting, when I played it twice...remember Lonnie?) After my therapist had to leave, I played both players to finish the nine, and on the famous 17th Island green, the babe hit one in the water long, and then proceeded to have a hole in one off the tee, for a PAR!
Only walked a mile today, as it was really hot in here, and I didn't want to gross everyone out, since I still can only sponge bathe! Treatments are still not a problem, thank goodness, and I remain pretty strong. Every day like that is a very good day. Thanks for all your posts, it's fun to read.
To other rookie bloggers who may be having trouble responding, here's a tip: Click on "Comments" under our entry, then you scroll down to the white box to enter a post. There is a drop down window below it. If you do not have a Google account (not necessary), select the "anonymous" in the drop down. Then just type in the big white box, and remember to sign it, so I will know who it came from.
Love to you all, and I will be in touch.
Mike
Thursday, April 23, 2009
Day 3 in Paradise
Hi All,
Didn't think I would be writing this often, but since I am feeling well, bored, and the spirt moved me, I am reaching out to all of you. Love the responses we have gotten thus far on the blog! I'm done with the 3rd day of chemo (50% home..hooray!). The staff here has been really great to me thus far, aside from the cute aspect, and my guardian angels, Cookie and Barbara have been great company. Biggest accomplishment of the day was a 2 mile walk on the hallway "track" (FYI that is 70 lengths of the 159 ft. hall that I am confined to in this section of the hospital). Not a very scenic hike, but it felt good, and I did it all with my trusty companion Daisy Mae (last name Pole, as in I.V.) rolling beside me. Then I got a visit from the Recreational Therapist, who has scheduled me for a game of Tiger Woods Golf on the wii machine tomorrow in my own room! How good can it get? I'm sure rougher days are ahead, but so far so good. Love to you all...keep in touch.
Mike
Didn't think I would be writing this often, but since I am feeling well, bored, and the spirt moved me, I am reaching out to all of you. Love the responses we have gotten thus far on the blog! I'm done with the 3rd day of chemo (50% home..hooray!). The staff here has been really great to me thus far, aside from the cute aspect, and my guardian angels, Cookie and Barbara have been great company. Biggest accomplishment of the day was a 2 mile walk on the hallway "track" (FYI that is 70 lengths of the 159 ft. hall that I am confined to in this section of the hospital). Not a very scenic hike, but it felt good, and I did it all with my trusty companion Daisy Mae (last name Pole, as in I.V.) rolling beside me. Then I got a visit from the Recreational Therapist, who has scheduled me for a game of Tiger Woods Golf on the wii machine tomorrow in my own room! How good can it get? I'm sure rougher days are ahead, but so far so good. Love to you all...keep in touch.
Mike
Wednesday, April 22, 2009
My first ever blog entry
Hi to all my fellow bloggers (never dreamed I would say those words!)I have to admit this was a great idea. I love hearing from all of you, and really appreciate the good wishes and prayers. One silver lining so far has been that I have a team of 3 doctors taking care of me, and they are all women! And 2 of the three are really cute!So having Cookie, sister Barbara, and all the doc's and nurses being babes, how bad could it get? I won't bore you with medical details...suffice it to say that so far so good, and everything seems to be progressing nicely. I can only tell you all that I am one lucky man to have the kind of friends and family I am blessed with, and I really cannot thank you enough for your support. Keep the feedback coming, it's great reading. Love to you all!
Mike
Mike
Tuesday, April 21, 2009
Day 2
Mike began chemo today. He is doing pretty well aside from a rash that came on fast. He had an allergic reaction to the codine that they gave him after the procedure yesterday. The Doctors are now trying to clear up the rash, at the same time as they proceed with the chemo. His spirits remain intact. We're hoping that they will find a quick cure for his rash. He loves your messages. Thanks for your thoughts and prayers. Anyone know a "rash prayer"? XO Cookie
Mike began chemo today. He is doing pretty well aside from a rash that came on fast. He had an allergic reaction to the codine that they gave him after the procedure yesterday. The Doctors are now trying to clear up the rash, at the same time as they proceed with the chemo. His spirits remain intact. We're hoping that they will find a quick cure for his rash. He loves your messages. Thanks for your thoughts and prayers. Anyone know a "rash prayer"? XO Cookie
Monday, April 20, 2009
And so it begins...
Mike had his central line put in today. He is doing well. Finally got him moved to a room at 8:00 pm. I don't recommend this "hotel". They take too long to clean their rooms. They had us believing that the room was being cleaned for 4 hours. I'm not sure that I believe them:) Tomorrow Mike starts chemo. He was in great spirits up until the last 2 seconds of the Bulls game when they lost. Oh well! Tomorrow is another day. Make it GREAT!
Sunday, April 19, 2009
Stem Cell Transplant
As many of you know on Monday April 20, Mike will be entering The University of Chicago Hospital to undergo a stem cell transplant. This blog will help you stay up to date on his status and will also allow you to leave encouraging messages if you wish! Please know how much we appreciate your support and concern.
Thursday, April 9, 2009
Happy Birthday Mike
Birthdays have always been cause for celebration in our home, but this birthday seems even more meaningful! Mike we hope you have a wonderful day and a healthy, prosperous year to come.
We Love You!
Your Family
Saturday, February 28, 2009
Welcome
We wanted to set up a blog to keep our family and friends up to date with what is going on in the "Center" of our lives.
Love,
Mike and Cookie
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