Hi All,
I know I have not written to blogland in a while, but I'm sure you have all found other things to do besides reading this! Hope you enjoyed Cookies' entry a few days ago, but to clarify one point: I never really saw her sitting down and watching the plants grow for any length of time. In fact, I rarely see her sit down at all, unless it is on the deck sunbathing on occasion! She is just not the sitting around type (I have become much better at that, and was always better than her).
Hard to believe I am home for three weeks already! This past week was a little more challenging, as I arrived at my first milestone of about 30 days post transplant, which meant a battery of tests last Tuesday was on my schedule. I went from a blood draw, to a PET scan, to a CT scan, to a bone marrow biopsy, to a surgeon visit, to a Pulmonary Function test. Do I know how to have a good time, or what?! I was back at U of C on Thursday, and found that my scans were clean (they better be!!!), I was still breathing, and I remain a little anemic. This explains why I have been a little low on energy lately, even compared to what I was before. But I am scheduled to get a couple of bags of blood tomorrow, so that should perk me up again!
One other bump in the road happened this week as well: I mentioned I saw the surgeon Tues., which was due to a recurrence of an infection starting up again in the site of my biopsy last Fall in the groin area. By Thursday, it was full blown, and he needed to reopen and drain the site while I was there. This did not make me particularly happy, but it is the third time this has happened, and therefore one at least knows what to expect. It is not related to my other treatment, and probably just occurred due to a suppressed immune system. So between the bone marrow biopsy on my left butt, and the right front groin, they now have me coming and going!!
This too shall pass. But meanwhile, I want to tell you all how fantastic my nurse Cookie has been, which will come as no surprise to anyone. It's one thing to be supportive and caring to your spouse in time of illness. It's another level, above and beyond the normal call of duty, to have to take care of things like my groin situation. I don't want to gross anyone out, but I must tell a few details so you understand her twice daily job fully: This is an open incision, that needs to be cleaned and packed twice a day. Picture Cook with her rubber gloves and mask, a wooden swab in hand, a piece of wet tape in the other hand, on her knees, pushing this tape into the incision until fully packed. Meanwhile, I am laying there grunting often in pain. Those who know her well, know that that's the hardest part....knowing that she is hurting me, while doing what is best for me at the same time! And the amazing part is that she never once has "blown her Cookies" . Nurse Mylove(2) would be so proud of her!! I am so proud of her...how lucky can one man be?!!
Sorry for rambling on, but I could not resist. Love to you all, and I hope to see many of you before too long.
Mike
Sunday, May 31, 2009
Thursday, May 28, 2009
Sunshine In My Heart
Dear Family and Friends,
I'm looking out on another gloomy day, but I'm thinking about all of the evidence that the sun is indeed shining. First of all, Mike is doing well. His counts are holding, and in some cases, improving. Today, he will get the results of a number of tests that he had on Tues. Hoping for confirmation that his body is doing what it needs to do to accept the 21 year old immune system. If only it were a case of "mind over matter", we'd be done with the whole process.
Dealing with not being able to return to school has left me with considerable time on my hands...which is NOT the usual scenario for me. Consequently, I have nearly completed the planting of the garden. It is thrilling to me to plan, plant, and nuture a garden. It compliments my most cherished role in life. Nuturing the people that I love. I hope that each of you feels loved and nutured by your family and friends...including Mike and I.
SOOOOOO...now that the plants are in the ground, getting plenty of nature's juice, I am watching them grow. No! REALLY! I pull a chair up to the plants and watch them for any sign of growth. Yesterday, I got so excited because I saw a leaf move. My excitement vanished when I saw the rain hitting the leaf . Although I didn't have any luck yesterday, I'm determined to try again. I really think this could be the best sporting event ever. Do you think that Mike will agree?
Well, Just poking fun at myself. I think I need a rescue plan. I can't hover around Mike. My flowers are growing too slowly. Friends are working. Even with exercising, gardening, and running errands, and tutoring, I have unexpected time on my hands. I suppose that I'll get used to it. There is a silver lining...it's called Mike. He's got a great attitude, and continues to maintain his sense of humor. All of you...Keep strong and Keep Centered.
With Love,
Cookie
I'm looking out on another gloomy day, but I'm thinking about all of the evidence that the sun is indeed shining. First of all, Mike is doing well. His counts are holding, and in some cases, improving. Today, he will get the results of a number of tests that he had on Tues. Hoping for confirmation that his body is doing what it needs to do to accept the 21 year old immune system. If only it were a case of "mind over matter", we'd be done with the whole process.
Dealing with not being able to return to school has left me with considerable time on my hands...which is NOT the usual scenario for me. Consequently, I have nearly completed the planting of the garden. It is thrilling to me to plan, plant, and nuture a garden. It compliments my most cherished role in life. Nuturing the people that I love. I hope that each of you feels loved and nutured by your family and friends...including Mike and I.
SOOOOOO...now that the plants are in the ground, getting plenty of nature's juice, I am watching them grow. No! REALLY! I pull a chair up to the plants and watch them for any sign of growth. Yesterday, I got so excited because I saw a leaf move. My excitement vanished when I saw the rain hitting the leaf . Although I didn't have any luck yesterday, I'm determined to try again. I really think this could be the best sporting event ever. Do you think that Mike will agree?
Well, Just poking fun at myself. I think I need a rescue plan. I can't hover around Mike. My flowers are growing too slowly. Friends are working. Even with exercising, gardening, and running errands, and tutoring, I have unexpected time on my hands. I suppose that I'll get used to it. There is a silver lining...it's called Mike. He's got a great attitude, and continues to maintain his sense of humor. All of you...Keep strong and Keep Centered.
With Love,
Cookie
Thursday, May 21, 2009
Day + 23
Hi To All,
It's been a few days, but I figure you all may be tiring of this, especially when there is not much new to report, so I will space them out accordingly. Medical update: Had two visits to the U. of C. this week, and still getting good reports on all the labs. They tweaked my meds again, and are watching out till next week for a little anemia, which is very common for us transplantees. The Doc asked me how many blood transfusions I had while in the hospital, and when I told him none, he seemed surprised, and said that was another exception to the norm! Next Tuesday is my next bone marrow biopsy (not my "fave"!), and they tell me from that from that, they will be able to tell exactly how much of my marrow is my original, or the Studs' contribution. Isn't that amazing? I'll fill you all in on the details next week sometime.
Anecdote for today: Many of you out there in blogland know that I am rather infamous for my lack of singing talent, though I usually do not let that stop me when moved by a great song. Cook is certainly used to it (I do not contain it to the shower stall). Some have heard me validate this with the story of having to mouth the words at our Fraternity Sing in college to avoid ruining it for everyone. Anyway, Cookie was driving me down to the hospital this week, and on the radio they were playing Lucy in the sky with diamonds (by the Beatles obviously). Having grown up in the Beatles Age (Jill A and I saw them live in Chicago on their first tour, circa early '60's), I still love their music, and began to sing along. Here's where it gets strange...I actually sang a whole bar, and turned to Cook and said: "Did you hear that? I think I actually was on key for that whole phrase!" She smiled, looked at me in amazement, and said: "You really were!"
People, I have to tell you that this was truly a shocking accomplishment. I don't think I have ever been on key for that many notes and words in my entire life! There is only one person in this world who has ever told me that I have a good voice, and that was my mother-in-law, which only goes to show you how thick those rose colored glasses are that she puts on whenever discussing her children, spouses and grandchildren. Even my own mother made fun of my singing!
I tell you this story because I think it may have something to do with the new me! Maybe my 21 year old stud is a rock star, and now all those songs brought to mind by the names of the people we have met on this journey will be ammunition for my new-found abilities!!! We will keep you "posted" if this does indeed continue.
Wishing all of you a great Memorial Day Weekend! The weather turned great here in Chicago, and we hope you all enjoy the time off from your daily chores. Good health to All!!
Mike
It's been a few days, but I figure you all may be tiring of this, especially when there is not much new to report, so I will space them out accordingly. Medical update: Had two visits to the U. of C. this week, and still getting good reports on all the labs. They tweaked my meds again, and are watching out till next week for a little anemia, which is very common for us transplantees. The Doc asked me how many blood transfusions I had while in the hospital, and when I told him none, he seemed surprised, and said that was another exception to the norm! Next Tuesday is my next bone marrow biopsy (not my "fave"!), and they tell me from that from that, they will be able to tell exactly how much of my marrow is my original, or the Studs' contribution. Isn't that amazing? I'll fill you all in on the details next week sometime.
Anecdote for today: Many of you out there in blogland know that I am rather infamous for my lack of singing talent, though I usually do not let that stop me when moved by a great song. Cook is certainly used to it (I do not contain it to the shower stall). Some have heard me validate this with the story of having to mouth the words at our Fraternity Sing in college to avoid ruining it for everyone. Anyway, Cookie was driving me down to the hospital this week, and on the radio they were playing Lucy in the sky with diamonds (by the Beatles obviously). Having grown up in the Beatles Age (Jill A and I saw them live in Chicago on their first tour, circa early '60's), I still love their music, and began to sing along. Here's where it gets strange...I actually sang a whole bar, and turned to Cook and said: "Did you hear that? I think I actually was on key for that whole phrase!" She smiled, looked at me in amazement, and said: "You really were!"
People, I have to tell you that this was truly a shocking accomplishment. I don't think I have ever been on key for that many notes and words in my entire life! There is only one person in this world who has ever told me that I have a good voice, and that was my mother-in-law, which only goes to show you how thick those rose colored glasses are that she puts on whenever discussing her children, spouses and grandchildren. Even my own mother made fun of my singing!
I tell you this story because I think it may have something to do with the new me! Maybe my 21 year old stud is a rock star, and now all those songs brought to mind by the names of the people we have met on this journey will be ammunition for my new-found abilities!!! We will keep you "posted" if this does indeed continue.
Wishing all of you a great Memorial Day Weekend! The weather turned great here in Chicago, and we hope you all enjoy the time off from your daily chores. Good health to All!!
Mike
Sunday, May 17, 2009
One Fine Day
Hi Family and Friends,
We've been home for a week now and things are going pretty well. Mike is getting stronger. We've been walking. The first walk was 10 minutes in length. Tonight we walked for 20 minutes. It felt great to be outside and be surrounded by fresh air.
All day I have been waiting to blog because I was excited to share a story with you. We had someone come to the house this morning to clean the gutters and windows. He even helped move some heavy planters for me. I know that you won't believe this...but, his name is Angel. YEP! We met an ANGEL today. I have added Angel to our growing list of recent new friends with incredible names. Mylove, Cherish, and now...Angel. These names all evoke feelings of tenderness, gentleness, and caring. All the love, care and support that you continue to give Mike and me is connected in some way to these names. Love is the spiritual connection that continues to link us with the most positive kind of energy. It feels as though you are encircling us with your acts of loving kindness.
I can't wait to meet the next new friend. Should we take bets on what wonderful new name will end up on the list? Tomorrow we head back to the hospital for a check-up. Let's all make it a GREAT DAY! Thanks for caring and sharing.
Love, Cookie
We've been home for a week now and things are going pretty well. Mike is getting stronger. We've been walking. The first walk was 10 minutes in length. Tonight we walked for 20 minutes. It felt great to be outside and be surrounded by fresh air.
All day I have been waiting to blog because I was excited to share a story with you. We had someone come to the house this morning to clean the gutters and windows. He even helped move some heavy planters for me. I know that you won't believe this...but, his name is Angel. YEP! We met an ANGEL today. I have added Angel to our growing list of recent new friends with incredible names. Mylove, Cherish, and now...Angel. These names all evoke feelings of tenderness, gentleness, and caring. All the love, care and support that you continue to give Mike and me is connected in some way to these names. Love is the spiritual connection that continues to link us with the most positive kind of energy. It feels as though you are encircling us with your acts of loving kindness.
I can't wait to meet the next new friend. Should we take bets on what wonderful new name will end up on the list? Tomorrow we head back to the hospital for a check-up. Let's all make it a GREAT DAY! Thanks for caring and sharing.
Love, Cookie
Day + 19
Hi All,
Well, I have been home a week now, and all seems to be going smoothly to date. Saw my transplant Doc on Thursday, and he confirmed that as well. They are constantly tweaking my medicine doses, and monitoring all my body functions, and I get the feeling that will go on for a long time, but that's what they are there for, right? Makes me think of a master chef, constantly tasting his creation, adding a pinch here, and a pinch there to offset too much of whatever ingredients he uses. ( I know Richie takes that analogy to heart!) Hope I taste terrific when it's all over! One difficult thing that I feel very badly about after my doctor visit...When I told him Cookie was going back to work next week to her 1st grade class, and I asked the doc what preventative measures she could take to not pick up any illness from the kids. He proceeded to tell me that, if at all possible, she should take off the remainder of the school year, or live somewhere else while she went back! Not very good options, either way. I dreaded telling her the advice when I got home. But when he explained to me that, among other everyday sicknesses floating around, the flu (not just the new version) is rampant and at it's highest level of the year. And he has transplant patients back in the hospital, some in serious trouble, from picking up what most of the adult world can fight off on their own. My darling wife is a very devoted teacher, as most of you know. But she is an even more devoted spouse, and refused to leave me for 3-4 weeks. So she is taking off and additional 2 weeks, and playing it by ear. She would love to see her little kids again, and may work out something for a few days at the end. Thank goodness there are teachers like her out there for our youth! And thank goodness she is my wife!
Meanwhile, it's great to finally see some sunshine. We were out on the deck yesterday, under the new umbrella we got from dear sister Barbara and brother-in-law Herb. And Cook and I took a stroll around the neighborhood as well (have to start regaining some muscle and stamina!). We had a great evening with friends Sandi and Warren Friday night, which was a treat. Thanks to Mylove (2) for keeping in touch! I ditto Cookies last blog, and she said it better than I can, regarding how great you all have been since the beginning of this thing...please keep it up!
Big day in sports today...Blackhawks vs. Wings (a classic original 6 rivalry that has the town buzzing), and two game sevens in the NBA...I know I will have plenty of TV time! Love to you All!
Mike
Well, I have been home a week now, and all seems to be going smoothly to date. Saw my transplant Doc on Thursday, and he confirmed that as well. They are constantly tweaking my medicine doses, and monitoring all my body functions, and I get the feeling that will go on for a long time, but that's what they are there for, right? Makes me think of a master chef, constantly tasting his creation, adding a pinch here, and a pinch there to offset too much of whatever ingredients he uses. ( I know Richie takes that analogy to heart!) Hope I taste terrific when it's all over! One difficult thing that I feel very badly about after my doctor visit...When I told him Cookie was going back to work next week to her 1st grade class, and I asked the doc what preventative measures she could take to not pick up any illness from the kids. He proceeded to tell me that, if at all possible, she should take off the remainder of the school year, or live somewhere else while she went back! Not very good options, either way. I dreaded telling her the advice when I got home. But when he explained to me that, among other everyday sicknesses floating around, the flu (not just the new version) is rampant and at it's highest level of the year. And he has transplant patients back in the hospital, some in serious trouble, from picking up what most of the adult world can fight off on their own. My darling wife is a very devoted teacher, as most of you know. But she is an even more devoted spouse, and refused to leave me for 3-4 weeks. So she is taking off and additional 2 weeks, and playing it by ear. She would love to see her little kids again, and may work out something for a few days at the end. Thank goodness there are teachers like her out there for our youth! And thank goodness she is my wife!
Meanwhile, it's great to finally see some sunshine. We were out on the deck yesterday, under the new umbrella we got from dear sister Barbara and brother-in-law Herb. And Cook and I took a stroll around the neighborhood as well (have to start regaining some muscle and stamina!). We had a great evening with friends Sandi and Warren Friday night, which was a treat. Thanks to Mylove (2) for keeping in touch! I ditto Cookies last blog, and she said it better than I can, regarding how great you all have been since the beginning of this thing...please keep it up!
Big day in sports today...Blackhawks vs. Wings (a classic original 6 rivalry that has the town buzzing), and two game sevens in the NBA...I know I will have plenty of TV time! Love to you All!
Mike
Wednesday, May 13, 2009
Home Sweet Home
Dear Family and Friends,
It is great to be home with Mike. I still can't believe the speed in which we were able to return home. "Mike is really incredible, isn't he?" I'm so proud of him for handling this ordeal with such a positive attitude. We are settling into a routine that includes alot of rest and a little work. At times I am reminded of the days when we waited for Jason and Marni to wake from their naps. It makes me feel young again. Mike blogged about appreciating the "little things" in life, and I couldn't agree more. I am filled with gratitude for the blessings that we've been given. Having Mike home and getting stronger is an answered prayer. In her last comment, Mari wrote about having her life saved by someone. I am so happy that Mari's fate was changed. She has been a positive influence in the lives of so many others (including us). I started thinking about how certain actions can change a life. All of you have been a lifeline for us. Our lives are forever changed by your kindness and generosity. It is our connections to one another that make us feel fulfilled. This blog has helped us to be connected to one another, and to form a circle of love around Mike. It has been a powerful tool in his recovery. It's an example of the positive effect of nuturing. The road is less rocky with your encouragement and support. Thank you for your part in bringing "MY BOYFRIEND" back home. I am so grateful to all of you.
Love, Cookie
It is great to be home with Mike. I still can't believe the speed in which we were able to return home. "Mike is really incredible, isn't he?" I'm so proud of him for handling this ordeal with such a positive attitude. We are settling into a routine that includes alot of rest and a little work. At times I am reminded of the days when we waited for Jason and Marni to wake from their naps. It makes me feel young again. Mike blogged about appreciating the "little things" in life, and I couldn't agree more. I am filled with gratitude for the blessings that we've been given. Having Mike home and getting stronger is an answered prayer. In her last comment, Mari wrote about having her life saved by someone. I am so happy that Mari's fate was changed. She has been a positive influence in the lives of so many others (including us). I started thinking about how certain actions can change a life. All of you have been a lifeline for us. Our lives are forever changed by your kindness and generosity. It is our connections to one another that make us feel fulfilled. This blog has helped us to be connected to one another, and to form a circle of love around Mike. It has been a powerful tool in his recovery. It's an example of the positive effect of nuturing. The road is less rocky with your encouragement and support. Thank you for your part in bringing "MY BOYFRIEND" back home. I am so grateful to all of you.
Love, Cookie
Tuesday, May 12, 2009
Day + 14
Hi All,
I know it's been a couple of days, but we had internet problems at home (plus I was lazy and enjoying being there too much). On the medical front, all is going well still. We went down to U of C yesterday for blood work and a checkup, and all is looking normal under the circumstances. I was told that I should not leave the house for about a month, except to walk in the neighborhood, or go on the deck (with a mask on). That did not thrill me, but better safe than sorry. They gave me the analogy that I have the immune system of a new-born baby, and getting things even as mild as the common cold to others, could land me in the hospital if passed on to me. Good news is that I can have a controlled stream of visitors at home, but please keep in mind that anyone who comes should not have even a hint of any illness, or have exposed to anyone that is sick recently. I ask you all to follow those guidelines, as I plan on staying out of the hospital for a long time. Speaking of being home, allow me to add a bit of philosophy here. I think everyone, after going through any trauma or personal tradgedy, tends to appreciate the good things in life for a little while. Unfortunately, most of us forget about that in rather short order, and go back to taking things for granted. I am at that point where I am appreciating all the little comforts and blessings I have, including all of you. To give you a couple of examples: I love that I now have large, absorbant, soft towels when I get out of the shower, as opposed to little things that are see-through, and almost take your skin off! I love that I have soft 2-ply tissue paper (no further explanation necessary)! I love that I have a bed and pillows that are not plastic that makes you sweat constantly! I love a TV with all the channels available! I love a house with different rooms to walk into, especially a kitchen with food I like in the Fridge! I think you all get the picture....please stop more often and smell the roses, and try to keep those minor annoyances in life in perspective. You will be a much happier person, I'm sure.
Enough of Mike on Life. In the near future, I have twice a week visits to the doctors, and home nursing care to take care of my catheter (a cute little think coming out of my chest with three lines (pigtails) to access all in and out activities easily (beats needle sticks by a mile). Also, the expected loss of hair occured the last 2 days, so those of you who have seen me lately, don't be surprised to see the Yul Brenner look again (now popularized by many star athletes you know). While until now, my hair was longer than any of you have seen in years, sorry most of you missed it. Since 3 is my lucky number, I am assuming that when it comes back again for the third time, it will be darker and fuller than ever!
On the sports front, my Blackhawks won their series last night in the most incredible third period I can remember, And my new favorite team, the Cav's swept again. Life is good.
I don't know if we will be doing this blog every day now, but I will be checking every day, so please keep the comments coming. Hope you all had a great Mothers Day!
Love to All,
Mike
I know it's been a couple of days, but we had internet problems at home (plus I was lazy and enjoying being there too much). On the medical front, all is going well still. We went down to U of C yesterday for blood work and a checkup, and all is looking normal under the circumstances. I was told that I should not leave the house for about a month, except to walk in the neighborhood, or go on the deck (with a mask on). That did not thrill me, but better safe than sorry. They gave me the analogy that I have the immune system of a new-born baby, and getting things even as mild as the common cold to others, could land me in the hospital if passed on to me. Good news is that I can have a controlled stream of visitors at home, but please keep in mind that anyone who comes should not have even a hint of any illness, or have exposed to anyone that is sick recently. I ask you all to follow those guidelines, as I plan on staying out of the hospital for a long time. Speaking of being home, allow me to add a bit of philosophy here. I think everyone, after going through any trauma or personal tradgedy, tends to appreciate the good things in life for a little while. Unfortunately, most of us forget about that in rather short order, and go back to taking things for granted. I am at that point where I am appreciating all the little comforts and blessings I have, including all of you. To give you a couple of examples: I love that I now have large, absorbant, soft towels when I get out of the shower, as opposed to little things that are see-through, and almost take your skin off! I love that I have soft 2-ply tissue paper (no further explanation necessary)! I love that I have a bed and pillows that are not plastic that makes you sweat constantly! I love a TV with all the channels available! I love a house with different rooms to walk into, especially a kitchen with food I like in the Fridge! I think you all get the picture....please stop more often and smell the roses, and try to keep those minor annoyances in life in perspective. You will be a much happier person, I'm sure.
Enough of Mike on Life. In the near future, I have twice a week visits to the doctors, and home nursing care to take care of my catheter (a cute little think coming out of my chest with three lines (pigtails) to access all in and out activities easily (beats needle sticks by a mile). Also, the expected loss of hair occured the last 2 days, so those of you who have seen me lately, don't be surprised to see the Yul Brenner look again (now popularized by many star athletes you know). While until now, my hair was longer than any of you have seen in years, sorry most of you missed it. Since 3 is my lucky number, I am assuming that when it comes back again for the third time, it will be darker and fuller than ever!
On the sports front, my Blackhawks won their series last night in the most incredible third period I can remember, And my new favorite team, the Cav's swept again. Life is good.
I don't know if we will be doing this blog every day now, but I will be checking every day, so please keep the comments coming. Hope you all had a great Mothers Day!
Love to All,
Mike
Saturday, May 9, 2009
Dear Family and Friends,
We're home. What a great great feeling! Our heads are swimming with the speed of Mike's release from the hospital. His labs last night reported that his white cell count was more than 17,000. YEAH for those "stud" stemmies. A few days ago his count was less than 100. He seriously set hospital records on many levels...Not surprising that he exceeded expectations. Come on... it's Mike. We all know that he's a fighter and a social butterfly. I believe that part of his motivation to recover as quickly as he did was is to get back to celebrating life with all of you. I thank all of you for your part in helping to bring "MY LOVE" home. It is the most wonderful Mother's gift of all time. Thank you for the love, laughter, and encouragement. You helped make a miracle begin for our family. Happy Mother's Day to all our amazing friends who are Mothers. We honor you and wish you health and happiness.
Love, Cookie and Mike
We're home. What a great great feeling! Our heads are swimming with the speed of Mike's release from the hospital. His labs last night reported that his white cell count was more than 17,000. YEAH for those "stud" stemmies. A few days ago his count was less than 100. He seriously set hospital records on many levels...Not surprising that he exceeded expectations. Come on... it's Mike. We all know that he's a fighter and a social butterfly. I believe that part of his motivation to recover as quickly as he did was is to get back to celebrating life with all of you. I thank all of you for your part in helping to bring "MY LOVE" home. It is the most wonderful Mother's gift of all time. Thank you for the love, laughter, and encouragement. You helped make a miracle begin for our family. Happy Mother's Day to all our amazing friends who are Mothers. We honor you and wish you health and happiness.
Love, Cookie and Mike
Day + 11
To All,
It is hard to believe, but I am actually sitting at my own desk, having spent the afternoon and evening in my own family room, in my own home!!! I cannot express what a wonderful feeling it is to be back in Deerfield, and out of the hospital. I was awakened by a lovely Doctor at 8:30 this morning, and she said "how do you feel"? I said, I just woke up, but I think I feel o.k., how do you think I look on the inside? She said, "you are doing great!" She proceeded to tell me that my white count had gone up to 17,000, and my platelets had risen nicely, and that everything was going really well from their point of view (the only point of view that matters!). And that there was no reason I could not go home today, after paperwork was finished. I immediately called Cook, and asked if her taxi service would please pick me up and take me to Deerfield.
As my darling wife mentioned in yesterday's blog, what a great Mothers Day gift for both of us, and I'm not even a mother (I think I have been called one at some point in my life)! I was sorry to take her away from her luxury city abode, but I think she will adjust.
I must tell you all that this has been an incredible journey so far, and I know there is a long way to go. But, thanks to all of your phenomenal support, I have gotten through phase 1 in a very lucky way. The doc told me that I probably had less possible problems with this transplant procedure than 95% of those that go through it! That doesn't make it easy, but it sure helps to be in the top 5%! My new stud cells are really doing a great job so far. We have a lot of work in front of us, but I know we will get through it all after such a wonderful beginning.
A special "public" thank you to my dear, devoted wife, who has been there every day for me, and who remains my primary caregiver, now that we are home. She is simply the best! Also thanks to my sister Barb, and all my friends who visited and lent me their support. As I found out last time, when this disease first occured, I have an unbelievable support group of family and friends behind me, and it is humbling to witness! This blog was a great idea, and offers me a daily reminder of that very fact. I wish all of the mothers out there a great day tomorrow, and may you all be blessed with a mother of your children as wonderful as mine!!
Love to All,
Mike
It is hard to believe, but I am actually sitting at my own desk, having spent the afternoon and evening in my own family room, in my own home!!! I cannot express what a wonderful feeling it is to be back in Deerfield, and out of the hospital. I was awakened by a lovely Doctor at 8:30 this morning, and she said "how do you feel"? I said, I just woke up, but I think I feel o.k., how do you think I look on the inside? She said, "you are doing great!" She proceeded to tell me that my white count had gone up to 17,000, and my platelets had risen nicely, and that everything was going really well from their point of view (the only point of view that matters!). And that there was no reason I could not go home today, after paperwork was finished. I immediately called Cook, and asked if her taxi service would please pick me up and take me to Deerfield.
As my darling wife mentioned in yesterday's blog, what a great Mothers Day gift for both of us, and I'm not even a mother (I think I have been called one at some point in my life)! I was sorry to take her away from her luxury city abode, but I think she will adjust.
I must tell you all that this has been an incredible journey so far, and I know there is a long way to go. But, thanks to all of your phenomenal support, I have gotten through phase 1 in a very lucky way. The doc told me that I probably had less possible problems with this transplant procedure than 95% of those that go through it! That doesn't make it easy, but it sure helps to be in the top 5%! My new stud cells are really doing a great job so far. We have a lot of work in front of us, but I know we will get through it all after such a wonderful beginning.
A special "public" thank you to my dear, devoted wife, who has been there every day for me, and who remains my primary caregiver, now that we are home. She is simply the best! Also thanks to my sister Barb, and all my friends who visited and lent me their support. As I found out last time, when this disease first occured, I have an unbelievable support group of family and friends behind me, and it is humbling to witness! This blog was a great idea, and offers me a daily reminder of that very fact. I wish all of the mothers out there a great day tomorrow, and may you all be blessed with a mother of your children as wonderful as mine!!
Love to All,
Mike
Friday, May 8, 2009
Homecoming
Dear Family and Friends,
Mike is feeling okay, but is very tired tonight so he asked me to update you with the news. The Doctors are thrilled with Mike's progress. He has nearly set a record for fastest grafting of stem cells. On day 8 Mike made a huge jump in his white cell count. Today his cell count was even higher. The Doctors are preparing him to come home. They have started to wean him from the IV's and started administering the meds in pill form. He will be on the anti-rejection drugs for several months. He will be coming home tomorrow or Sunday. I never thought that I would be celebrating Mother's Day at home with Mike. This is so exciting. He told me I could pick out any card I want for Mother's Day since he can not shop. I told him to make a card for me. Is there anyone out there that doesn't know how to draw a flower? I don't think so! I know one thing for sure...this is the best present ever.
We are blessed to have you in our lives and everyday is a reminder of our good fortune. To all of you, we say thank you for your encouragement, quotes, words of wisdom, and for providing plenty of laughs. The next phase of Mike's recovery will not be as confining, so we hope to be able to spend time with you. Your love is as healing as medicine.
To all you Moms...we wish you health, happiness, and endless love. Enjoy your families and the gift of time.
We Love You,
Cookie and Mike
Mike is feeling okay, but is very tired tonight so he asked me to update you with the news. The Doctors are thrilled with Mike's progress. He has nearly set a record for fastest grafting of stem cells. On day 8 Mike made a huge jump in his white cell count. Today his cell count was even higher. The Doctors are preparing him to come home. They have started to wean him from the IV's and started administering the meds in pill form. He will be on the anti-rejection drugs for several months. He will be coming home tomorrow or Sunday. I never thought that I would be celebrating Mother's Day at home with Mike. This is so exciting. He told me I could pick out any card I want for Mother's Day since he can not shop. I told him to make a card for me. Is there anyone out there that doesn't know how to draw a flower? I don't think so! I know one thing for sure...this is the best present ever.
We are blessed to have you in our lives and everyday is a reminder of our good fortune. To all of you, we say thank you for your encouragement, quotes, words of wisdom, and for providing plenty of laughs. The next phase of Mike's recovery will not be as confining, so we hope to be able to spend time with you. Your love is as healing as medicine.
To all you Moms...we wish you health, happiness, and endless love. Enjoy your families and the gift of time.
We Love You,
Cookie and Mike
Thursday, May 7, 2009
Day + 9
Hi All,
Well, all I can say is that day + 9 was one hell of a day!! Actually, it was one of the best days I have had in a very long time. Let me explain: My doctor team entered the room midday, while my true love Cook was here (she's here every day!), and asked if we had heard the good news about my "counts"? They proceeded to tell us that my white cell count had made an extremely bold move, and was now at 2.6. I said, bewildered, doesn't that translate to 2,600? Yes, was the answer, with a big smile! Is that kind of move proof positive that my new stem cells had indeed grafted, I asked? Again, they said yes! I had been informed several times that this usually happens on days 10-12. But they said day 8 was possible, and it really did happen. Then they proceeded to lay out the new game plan based on this wonderful news: I would be taken off of all my IV medicines, and switched over to oral (pill) forms. They would then monitor all that they do daily for the next couple of days, hoping that those stud cells kept up the great work (while I adjusted to life without Daisy Mae Pole). And if that were to be the case, they might send me home over the weekend! I looked over at Cookie, and her facial expression mirrored exactly what was on my mind....total shock and elation. Forget blowing our minds, that we could be out of here in less than 3 weeks, after assuming a 4 week stay....what was really, really important was that my 21 year old stud cells were being graciously accepted by their host, me!
So I ask you all...how good of a day was this? pretty, pretty, pretty good! Anything else that transpired today now seemed rather insignificant, so I am not going into any other details. You now all know, as you read this, that a major hurdle has been jumped, and we are into the next phase of this incredible journey. Now we concentrate on getting better each and every day. And then, eventually, we hope to find out that the new me no longer includes those rotten cancer cells anymore! Sounds like a plan to me.
Love to All!
Mike
Well, all I can say is that day + 9 was one hell of a day!! Actually, it was one of the best days I have had in a very long time. Let me explain: My doctor team entered the room midday, while my true love Cook was here (she's here every day!), and asked if we had heard the good news about my "counts"? They proceeded to tell us that my white cell count had made an extremely bold move, and was now at 2.6. I said, bewildered, doesn't that translate to 2,600? Yes, was the answer, with a big smile! Is that kind of move proof positive that my new stem cells had indeed grafted, I asked? Again, they said yes! I had been informed several times that this usually happens on days 10-12. But they said day 8 was possible, and it really did happen. Then they proceeded to lay out the new game plan based on this wonderful news: I would be taken off of all my IV medicines, and switched over to oral (pill) forms. They would then monitor all that they do daily for the next couple of days, hoping that those stud cells kept up the great work (while I adjusted to life without Daisy Mae Pole). And if that were to be the case, they might send me home over the weekend! I looked over at Cookie, and her facial expression mirrored exactly what was on my mind....total shock and elation. Forget blowing our minds, that we could be out of here in less than 3 weeks, after assuming a 4 week stay....what was really, really important was that my 21 year old stud cells were being graciously accepted by their host, me!
So I ask you all...how good of a day was this? pretty, pretty, pretty good! Anything else that transpired today now seemed rather insignificant, so I am not going into any other details. You now all know, as you read this, that a major hurdle has been jumped, and we are into the next phase of this incredible journey. Now we concentrate on getting better each and every day. And then, eventually, we hope to find out that the new me no longer includes those rotten cancer cells anymore! Sounds like a plan to me.
Love to All!
Mike
Wednesday, May 6, 2009
Day + 8
Hi All,
Quick medical update: Best news was that my white cell count actually went up from the gutter today. Too soon to call, but it could be the stud cells working. Day 8 would be early (usually happens 10-12 days), but not unheard of. We'll see the next couple of days if the trend continues. Only negative was that these shots I get daily now (neupogen) which stimulate bone marrow activity, often have a side effect of causing bone pain while they work. I had some pain in my lower back, and resorted to Vicodin (Ricky, you're the expert on that). Actually got a little buzz!:) No worries about turning into Brett Farve (speaking of whom, is this getting obnoxious about another comeback, or what?). Speaking of sports, Blackhawks are down 2 to 1, but Cav's sure looked impressive! Felt terrible that Celtics and Lakers lost game 1 each (just kidding!)
Rich Gersh and Warren visited me today, which was great fun. They saw two of my female medical team members...check with them for unbiased opinion. Rich brought his backgammon set, itching for revenge from when we played a couple of years ago when I was stuck at home, and beat him badly. Between the vicodin, and feeling sorry for a great friend in such obvious mental anguish, I did let him pull out a victory! In addition, Rich suggested I try the chicken parmesan on the menu. I did so tonight, and in a real squeaker, the vote went to Rich's recipe over the Hospital version, so his reputation is secure!
Family update: brother-in-law Herb celebrated his 65th yesterday...Happy birthday to him! Also, niece Jen is home from the hospital, and doing well...we are thrilled for her and wish a continued speedy recovery.
That's all folks...keep it coming, and Love to ALL,
Mike
Quick medical update: Best news was that my white cell count actually went up from the gutter today. Too soon to call, but it could be the stud cells working. Day 8 would be early (usually happens 10-12 days), but not unheard of. We'll see the next couple of days if the trend continues. Only negative was that these shots I get daily now (neupogen) which stimulate bone marrow activity, often have a side effect of causing bone pain while they work. I had some pain in my lower back, and resorted to Vicodin (Ricky, you're the expert on that). Actually got a little buzz!:) No worries about turning into Brett Farve (speaking of whom, is this getting obnoxious about another comeback, or what?). Speaking of sports, Blackhawks are down 2 to 1, but Cav's sure looked impressive! Felt terrible that Celtics and Lakers lost game 1 each (just kidding!)
Rich Gersh and Warren visited me today, which was great fun. They saw two of my female medical team members...check with them for unbiased opinion. Rich brought his backgammon set, itching for revenge from when we played a couple of years ago when I was stuck at home, and beat him badly. Between the vicodin, and feeling sorry for a great friend in such obvious mental anguish, I did let him pull out a victory! In addition, Rich suggested I try the chicken parmesan on the menu. I did so tonight, and in a real squeaker, the vote went to Rich's recipe over the Hospital version, so his reputation is secure!
Family update: brother-in-law Herb celebrated his 65th yesterday...Happy birthday to him! Also, niece Jen is home from the hospital, and doing well...we are thrilled for her and wish a continued speedy recovery.
That's all folks...keep it coming, and Love to ALL,
Mike
Tuesday, May 5, 2009
Day + 7
Hi All,
This will be brief, as it is late and I am sleepy. I have hit "rock bottom" on the counts, so that goal has been accomplished. Now we wait probably another 5 days, and hope to start in the other direction, as the "stud cells" (my new name for them) start to graft and do their thing. Still no major problems. In one regard, it is hard to believe I have been in here for 15 days already.
I hope that is 50% or more time put in, but we'll have to wait and see about that. One introspective note: I think I have recaptured some of the patience I used to have in my youth. I learned a great deal of patience in the Army, in the early '70's. I kept it for years, but it slowly waned as the decades passed, and I no longer considered myself a truly patient man anymore (I think Cookie, Mark, and several others will back me up on that). But I believe this experience has forced me to learn that valuable tool all over again!
One last note: I was taken aback by the many comments supporting Cookie and her quick KO in the boxing match. It seemed to make many of you very happy. Is this a sexist response, I wonder? Could be! Please examine your motives, and get back to me on that.
Goodnight, and love to All.
Mike
This will be brief, as it is late and I am sleepy. I have hit "rock bottom" on the counts, so that goal has been accomplished. Now we wait probably another 5 days, and hope to start in the other direction, as the "stud cells" (my new name for them) start to graft and do their thing. Still no major problems. In one regard, it is hard to believe I have been in here for 15 days already.
I hope that is 50% or more time put in, but we'll have to wait and see about that. One introspective note: I think I have recaptured some of the patience I used to have in my youth. I learned a great deal of patience in the Army, in the early '70's. I kept it for years, but it slowly waned as the decades passed, and I no longer considered myself a truly patient man anymore (I think Cookie, Mark, and several others will back me up on that). But I believe this experience has forced me to learn that valuable tool all over again!
One last note: I was taken aback by the many comments supporting Cookie and her quick KO in the boxing match. It seemed to make many of you very happy. Is this a sexist response, I wonder? Could be! Please examine your motives, and get back to me on that.
Goodnight, and love to All.
Mike
Stem Cell Transplant Bond Style
Hi Family and Friends,
Hope all of you are well and enjoying the beautiful weather. Mike is doing okay. He walked up and down the corridor today. He and Daisy Mae Pole walked with "attitude". Speaking of walking...I walked early this morning to Millenium Park. I found myself surrounded by a "legion of workers", with hardly any room to move. It felt like it might turn into a "mosh pit" and that was scary. I needed a plan. Suddenly, I remembered the days of living in the city and how to "walk the walk" and I kicked into gear. What that means is that I went into "ZOOM MODE". Let me explain..."Zoom Mode" is when you use your body like a racecar. It is essential that you weave in and out of the crowd, and that you do not use a signal to change lanes. It is important that you make very little to no eye contact with other walkers to convince them that you really mean business. If someone seems to resist your "zooming"...it is acceptable to make THE sound. Repeating "zoom zoom" reinforces your position, and scares people away. Wow, I sure got to the park quickly this morning. Can't wait until tomorrow. Just hope I don't run into the landscapers again. Being a flower stalker and a "zoomer" might get me banned from Starbucks.
You won't believe this next bit of news. Mike has a nurse who is named "Cherish". Yep, My Love and Cherish are on "The Mike Team". Now, doesn't that sound like Mike is in the James Bond Stem Cell Transplant unit? His incredible team is bringing him one day closer to recovery. I guess I shouldn't talk about names...in our family we have a Cookie and a Muffin. Isn't that too sweet? Thank you for taking this journey with us. You line the road with light to guide the way. Thank you-
Love, Cookie
Hope all of you are well and enjoying the beautiful weather. Mike is doing okay. He walked up and down the corridor today. He and Daisy Mae Pole walked with "attitude". Speaking of walking...I walked early this morning to Millenium Park. I found myself surrounded by a "legion of workers", with hardly any room to move. It felt like it might turn into a "mosh pit" and that was scary. I needed a plan. Suddenly, I remembered the days of living in the city and how to "walk the walk" and I kicked into gear. What that means is that I went into "ZOOM MODE". Let me explain..."Zoom Mode" is when you use your body like a racecar. It is essential that you weave in and out of the crowd, and that you do not use a signal to change lanes. It is important that you make very little to no eye contact with other walkers to convince them that you really mean business. If someone seems to resist your "zooming"...it is acceptable to make THE sound. Repeating "zoom zoom" reinforces your position, and scares people away. Wow, I sure got to the park quickly this morning. Can't wait until tomorrow. Just hope I don't run into the landscapers again. Being a flower stalker and a "zoomer" might get me banned from Starbucks.
You won't believe this next bit of news. Mike has a nurse who is named "Cherish". Yep, My Love and Cherish are on "The Mike Team". Now, doesn't that sound like Mike is in the James Bond Stem Cell Transplant unit? His incredible team is bringing him one day closer to recovery. I guess I shouldn't talk about names...in our family we have a Cookie and a Muffin. Isn't that too sweet? Thank you for taking this journey with us. You line the road with light to guide the way. Thank you-
Love, Cookie
Monday, May 4, 2009
Day + 6
Hi All,
After a day off blogging, I thought I would enter a few words. But how good is Cookie getting at this?!! She is getting more creative by the day, my little drooling Gardener. But I must warn you just a little bit, that I see a tendency to expand on the truth just a tad, for humorous effect. I think she got this from brother Brook. But I know you all are enjoying her new-found outlet for creativity, and that's all that matters.
I have slowed down somewhat, as expected. However, just fatigue is o.k. with me. The day goes faster, the more you sleep! We did have fun with the Wii again this afternoon. Down 2 games to one, I made a comeback in Tennis to win the series 3 to 2. I was a little shocked when Cook quickly KO'd me in boxing...that girl is tougher than you think. But don't believe I was maniacal when I returned the favor...through a lifetime of sports, I learned to be a gracious winner and loser!
I will go on record, now that the Bulls are gone, that I am now rooting for the Cavaliers to go all the way (good luck Don C.). And I am also enjoying the Blackhawks' resurgence. My Cubs are on the verge of their first 4 game win streak, so don't get too cocky about St. Louis just yet (long way to go, Mark!). As Cook said, keep the comments coming....we just love it!
Love to all!
Mike
After a day off blogging, I thought I would enter a few words. But how good is Cookie getting at this?!! She is getting more creative by the day, my little drooling Gardener. But I must warn you just a little bit, that I see a tendency to expand on the truth just a tad, for humorous effect. I think she got this from brother Brook. But I know you all are enjoying her new-found outlet for creativity, and that's all that matters.
I have slowed down somewhat, as expected. However, just fatigue is o.k. with me. The day goes faster, the more you sleep! We did have fun with the Wii again this afternoon. Down 2 games to one, I made a comeback in Tennis to win the series 3 to 2. I was a little shocked when Cook quickly KO'd me in boxing...that girl is tougher than you think. But don't believe I was maniacal when I returned the favor...through a lifetime of sports, I learned to be a gracious winner and loser!
I will go on record, now that the Bulls are gone, that I am now rooting for the Cavaliers to go all the way (good luck Don C.). And I am also enjoying the Blackhawks' resurgence. My Cubs are on the verge of their first 4 game win streak, so don't get too cocky about St. Louis just yet (long way to go, Mark!). As Cook said, keep the comments coming....we just love it!
Love to all!
Mike
Day 6
I've been thinking about the various ways that we are available to us to communicate with one another. Between house and cell phones, text messages, blogs, e-mails, and Facebook accounts, etc. , we almost always have a way to connect to each other. Sometimes, this may not seem like such a good idea...but, lately, I have come to have a new appreciation for this ability. Sitting in the room at the hospital has been tolerable due to the various methods available to us to bring the outside world in. You have given us inspiration, and provided us with a great amount of laughter. A heartfelt thanks to all of you bloggers, phone callers, e-mailers, text messengers, and Facebook users.
Mike is doing all right. He has slowed down and is tired today. He is resting comfortably. This is all part of the process. Bridgett, the Recreational Therapist, came in today. We "Wii-ed". I have no idea how to refer to this technology in the past tense. We played tennis and then switched to boxing. First, I KO'd Mike...then he KO'd me. I wouldn't say that we enjoyed doing this to each other...but I did notice him smiling like a "crazy person", and mumbling something about "payback".
I took a walk on Michigan Ave. today. As I walked into Starbucks, I saw a small huddle of people. I swear I heard them say..."There she's is...Crazing Flower Lady!" I think Mari is right...I now have a reputation as a flower stalker. I think that I need an intervention. At the least, I need one of the Healy's Irish prayers...please hurry!
Love, Cookie
Mike is doing all right. He has slowed down and is tired today. He is resting comfortably. This is all part of the process. Bridgett, the Recreational Therapist, came in today. We "Wii-ed". I have no idea how to refer to this technology in the past tense. We played tennis and then switched to boxing. First, I KO'd Mike...then he KO'd me. I wouldn't say that we enjoyed doing this to each other...but I did notice him smiling like a "crazy person", and mumbling something about "payback".
I took a walk on Michigan Ave. today. As I walked into Starbucks, I saw a small huddle of people. I swear I heard them say..."There she's is...Crazing Flower Lady!" I think Mari is right...I now have a reputation as a flower stalker. I think that I need an intervention. At the least, I need one of the Healy's Irish prayers...please hurry!
Love, Cookie
Sunday, May 3, 2009
One Fine Day
Hi Family and Friends,
Mike is doing well. He's a little less energetic today, but this is to be expected since his white counts are low. This is a good time for his body to rest and to gain srength. His spirits are high, and even though The Bulls didn't win last night's game, he is proud of the team for their exciting performance in the play-offs. We're taking one day at a time and thinking that each new day is a day closer to recovery. We appreciate your contact with us and we look forward to hearing from you. Enjoy the beautiful days ahead. You have given us immense strength with your encouragement via telephone calls and blogs. We are so lucky to have you in our lives. We Love You-
Cookie and Mike
Mike is doing well. He's a little less energetic today, but this is to be expected since his white counts are low. This is a good time for his body to rest and to gain srength. His spirits are high, and even though The Bulls didn't win last night's game, he is proud of the team for their exciting performance in the play-offs. We're taking one day at a time and thinking that each new day is a day closer to recovery. We appreciate your contact with us and we look forward to hearing from you. Enjoy the beautiful days ahead. You have given us immense strength with your encouragement via telephone calls and blogs. We are so lucky to have you in our lives. We Love You-
Cookie and Mike
Saturday, May 2, 2009
Gardens
This morning I went to Walgreens located near my hotel. On the way, there was a flurry of activity as many workers were conferring about the planting they were doing. Michigan Ave. is populated with many planters that are bursting with color and spring flowers. The workers were busy planting summer flowers (I happen to know the difference between spring and summer flowers). I was so excited to see gardening activity, that I stopped to watch the workers as they busily set their flowers in the planters and began to dig in the dirt. I so wanted to join them in this endeavor, and know that I made a spectacle of myself by staring longingly at the flowers being placed into the soil. I think that I may have scared the workmen when I took a seat near the window of Starbucks so I could continue to watch them work on their planting. I noticed them looking at me with sideways glances and I thought "how could I be making them feel uncomfortable?" By then, I realized that I was drooling...(just a little), and smiling like a Cheshire Cat. I am so happy for SPRING to finally be here, and for the profusion of color that surrounds me. It has been a very long winter. I'm missing the spring flowers in our garden, so I am constantly looking at the beautiful planters on Michigan Ave. to soak up all the color. Finally...Spring is here and we can welcome sunshine and the re-birth of the earth's treasures.
I began thinking of Mike and the stem cell transplant and realized that there is an obvious comparison to the planting of a garden. I see Mike as the earth. The stem cells are a plant that has been placed in the soil. Now that the plant has been planted in the earth, it needs to be cared for to take root and to grow into a healthy flower. It must be fed all the nutrients that will make it thrive. Family and Friends represent the nutrients of life. YOU are making the soil rich with your love and prayers. Together, we are tending to our plant and will nuture it, protect it, and love it. Mike is like an unique plant that is about to flower. What a miracle life is...
Another flower is emerging. It is called "Jen". Both of the flowers are the beginning of a garden. I can tell that THIS will be my "all time" favorite garden.
Thanks for Caring-
Love You,
XO Cookie
I began thinking of Mike and the stem cell transplant and realized that there is an obvious comparison to the planting of a garden. I see Mike as the earth. The stem cells are a plant that has been placed in the soil. Now that the plant has been planted in the earth, it needs to be cared for to take root and to grow into a healthy flower. It must be fed all the nutrients that will make it thrive. Family and Friends represent the nutrients of life. YOU are making the soil rich with your love and prayers. Together, we are tending to our plant and will nuture it, protect it, and love it. Mike is like an unique plant that is about to flower. What a miracle life is...
Another flower is emerging. It is called "Jen". Both of the flowers are the beginning of a garden. I can tell that THIS will be my "all time" favorite garden.
Thanks for Caring-
Love You,
XO Cookie
Day + 4
Hi All,
Well, our crazy ride with da Bulls is finally over...I know it is a letdown for many, but I have to say honestly that I am not truly all that upset. I am very proud of the team and their effort throughout the series, and they really grew individually and as a unit immensely. I know in "coachspeak", there are not supposed to be moral victories, but that's how I feel anyway! They gave us great entertainment, and lots to talk about throughout. I salute them all!
Otherwise, I have little to report tonight. Thanks to niece Beth for the visit today, and her expert help on spreadsheets! My condition remains mostly unchanged, and that's a good thing. Thanks for all your encouragement as always!
Love to All,
Mike
Well, our crazy ride with da Bulls is finally over...I know it is a letdown for many, but I have to say honestly that I am not truly all that upset. I am very proud of the team and their effort throughout the series, and they really grew individually and as a unit immensely. I know in "coachspeak", there are not supposed to be moral victories, but that's how I feel anyway! They gave us great entertainment, and lots to talk about throughout. I salute them all!
Otherwise, I have little to report tonight. Thanks to niece Beth for the visit today, and her expert help on spreadsheets! My condition remains mostly unchanged, and that's a good thing. Thanks for all your encouragement as always!
Love to All,
Mike
Friday, May 1, 2009
Day + 3
Hi All,
Everyone recovered from last nights' game yet? Can't wait for Sat. nite in Boston!
Not a lot new, so I thought I would give a quick medical update for those not in the know about these things, and what we expect to happen down the road here. I mentioned that I had been feeling very good, and that my blood "counts" were remaining high. That all changed today, but in a way that was totally foreseeable. Basically, this procedure starts with 6 days of high Chemo doses, a day off, the transplant, and then a wait and see posture. The doc's totally expect your counts to bottom out, as the chemo does what it is supposed to do, which is pretty much destroy your immune system, and then let the new stem cells hopefully start building it back up gradually, as they "graft". That's the quick version of the entire deal. So they were waiting for me to kind of wipe out, which started today. My view is that I knew it was coming, and this next week to ten days is where I have to tough it out a little, and hope that nothing serious happens infection-wise, or with side effects. I am mentally prepared for this, so please do not worry unneccessarily. I may not feel like writing you all each and every day, but please feel free to write me back anyway. As far as I am concerned, now we are "getting it on" and I look forward to starting, so I can get through it and come out the other side on the road to recovery.
That said, I will bid you all a good night. Keep those positive thoughts coming, and also keep our niece Jen in your prayers for a speedy recovery from her surgery!
Love to ALL
Mike
Everyone recovered from last nights' game yet? Can't wait for Sat. nite in Boston!
Not a lot new, so I thought I would give a quick medical update for those not in the know about these things, and what we expect to happen down the road here. I mentioned that I had been feeling very good, and that my blood "counts" were remaining high. That all changed today, but in a way that was totally foreseeable. Basically, this procedure starts with 6 days of high Chemo doses, a day off, the transplant, and then a wait and see posture. The doc's totally expect your counts to bottom out, as the chemo does what it is supposed to do, which is pretty much destroy your immune system, and then let the new stem cells hopefully start building it back up gradually, as they "graft". That's the quick version of the entire deal. So they were waiting for me to kind of wipe out, which started today. My view is that I knew it was coming, and this next week to ten days is where I have to tough it out a little, and hope that nothing serious happens infection-wise, or with side effects. I am mentally prepared for this, so please do not worry unneccessarily. I may not feel like writing you all each and every day, but please feel free to write me back anyway. As far as I am concerned, now we are "getting it on" and I look forward to starting, so I can get through it and come out the other side on the road to recovery.
That said, I will bid you all a good night. Keep those positive thoughts coming, and also keep our niece Jen in your prayers for a speedy recovery from her surgery!
Love to ALL
Mike
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